Community-based nonwork supports: findings from the national survey of day and employment programs for people with developmental disabilities.
Community nonwork services are booming nationwide, but fuzzy goals and weak standards risk siphoning money away from real jobs.
01Research in Context
What this study did
Sulewski et al. (2008) mailed a survey to every known day and employment program in the United States. They asked what services adults with developmental disabilities receive outside of regular jobs. The team wanted a national picture of these "nonwork" community supports.
What they found
Programs reported big growth in art classes, bowling leagues, and other nonwork activities. Yet no two agencies defined these services the same way. Most lacked quality rules or ways to show the activities helped clients. Staff feared the new services were pulling money away from supported-employment slots.
How this fits with other research
Fyfe et al. (2007) used the same survey one year earlier and saw the same trend: most adults were stuck in facility rooms instead of real jobs. Kramer et al. (2020) later showed the pattern held—only 19 % of adults with IDD held integrated jobs years later.
Amado et al. (2013) reviewed inclusion studies and found most research still came from paid-service settings, not everyday community life. Together the papers paint a steady picture: nonwork services keep expanding while integrated employment stays flat.
Bogenschutz et al. (2010) surveyed self-directed programs and found another gap: users liked choosing staff, but workers got little training. The two surveys agree—community services grow fast, yet quality and training lag behind.
Why it matters
If you write transition plans, question any slot labeled "community-based nonwork." Ask the provider for a written goal, data sheet, and exit plan. Without those, the slot may just fill a calendar and drain funds from a real job. Push for clear definitions and employment first.
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02At a glance
03Original abstract
This article presents findings on community-based nonwork (CBNW; activities that do not involve paid employment but take place in the community) from a 2001 survey of state intellectual disabilities/developmental disabilities agency directors. Survey responses indicated that CBNW is a considerable and growing part of the day services mix but that it is loosely defined with respect to requirements, activities, populations served, and goals. Although CBNW has the potential to enhance the lives of people with disabilities, these findings raise some concerns, including how quality can be assured when supports are loosely defined, how CBNW can be provided without taking resources away from supported employment, and whether community connections can be made when people are supported in groups.
Intellectual and developmental disabilities, 2008 · doi:10.1352/2008.46:456-467