Service Delivery

Brief Report: Mapping Systems of Support and Psychological Well-Being of Mothers of Adolescents with Autism Spectrum Disorders.

Kuhn et al. (2018) · Journal of autism and developmental disorders 2018
★ The Verdict

For moms of teens with autism, stressful support ties—not the lack of good ones—drive depression and stress.

✓ Read this if BCBAs running teen clinics or transition plans.
✗ Skip if Practitioners who only serve preschool families.

01Research in Context

01

What this study did

Kuhn et al. (2018) asked moms of teens with autism to draw a map of their support system. They then rated each tie as strong, weak, or stressful. The team checked if these tie types predicted mom’s mood, stress, and sense of burden.

No kids were taught new skills. No moms got therapy. The study simply watched and measured.

02

What they found

Stressful or weak ties hurt. Moms who had more of them felt more depressed, more stressed, and more burdened. Strong ties did not lift mood. Only the bad ties mattered.

In short, bad support is worse than no support.

03

How this fits with other research

The finding backs up Yorke et al. (2018). Their big review shows that when kids with autism have extra behavior problems, parent stress rises. Jocelyn adds the reason: those extra problems often come with messy, draining support ties.

Ming-Zhao et al. (2018) seems to disagree. They found that more social support boosts life satisfaction. The gap is age. Ming-Hui looked at parents of young kids where support is fresh and hopeful. Jocelyn looked at worn-out moms of teens. Support can help early on, yet still turn sour later.

Cohn et al. (2007) and Carr et al. (2013) already warned that stress jumps when the child hits adolescence. Jocelyn shows one engine driving that jump: support ties that have turned toxic.

04

Why it matters

When you meet a family, ask mom to list the people she counts on. Mark any tie she calls “stressful” or “not really there.” Those names predict her mental health more than the number of “helpful” people. Work with her to set boundaries, cut loose harmful ties, or shift tasks to neutral helpers. One less draining phone call can drop her depression score.

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Add a one-page “support map” to your intake packet and flag any tie the mom labels stressful.

02At a glance

Intervention
not applicable
Design
pre post no control
Sample size
20
Population
autism spectrum disorder
Finding
negative
Magnitude
small

03Original abstract

Parents of children with autism spectrum disorders are generally known to experience elevated levels of stress and poorer psychological well-being. To provide treatments and resources that most effectively support parent mental health, it is critical to understand how parents' connections with various networks and systems impact their well-being. This study examined the relationship between the psychological well-being of mothers of adolescents with ASD (n = 20) and their systems of support from an ecological systems theoretical framework. Findings indicated that most connections across mothers' ecosystems were strong in nature. However, the presence of strong connections was not significantly related to psychological well-being. In contrast, stressful/weak connections were significantly related to elevated levels of depressive symptoms, perceived stress, and sense of burden.

Journal of autism and developmental disorders, 2018 · doi:10.1007/s10803-017-3381-0