Service Delivery

Amor and Social Stigma: ASD Beliefs Among Immigrant Mexican Parents.

Cohen et al. (2018) · Journal of autism and developmental disorders 2018
★ The Verdict

Mexican-heritage parents link autism to love, vaccines, genes, and shame—ask about these views at intake to keep them in services.

✓ Read this if BCBAs serving Spanish-speaking immigrant families in clinics or schools.
✗ Skip if Clinicians who only see English-speaking families with long service histories.

01Research in Context

01

What this study did

Cohen et al. (2018) talked with Mexican-heritage immigrant parents living in the United States.

They asked how these parents think about autism, what causes it, and how they feel about it.

The team used open interviews so parents could speak in their own words.

02

What they found

Parents often said their child’s autism showed loving and special traits.

Many named vaccines or family genes as the cause.

They also shared deep worry about being judged and feeling shame.

03

How this fits with other research

Viefhaus et al. (2020) surveyed almost 3 000 families across six Latin-American countries. They found the same mix of stigma and money problems, showing the issue is wider than one group.

Rivera-Figueroa et al. (2025) looked at many US races and ethnicities. They learned that stigma hurts service use mainly for Asian families, while money hurdles hit everyone. The results seem different, but both studies agree that shame is only one piece of the barrier puzzle.

Chan et al. (2021) in Hong Kong tracked how stigma raises parent depression. Their numbers back up the Mexican parents’ stories that judgment brings heavy feelings.

04

Why it matters

You will build trust faster if you ask new Mexican families what they believe about cause, love, and shame. Write their answers in the intake. Use their words to pick handouts and plan visits. When you show you heard them, they stay.

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Add one open question to your intake form: “What do you think caused your child’s autism?”

02At a glance

Intervention
not applicable
Design
qualitative
Sample size
25
Population
autism spectrum disorder
Finding
not reported

03Original abstract

This study examined cultural beliefs about ASD and its causes among Mexican-heritage families. In focus group interviews, we asked 25 immigrant parents of children with ASD to identify words they associated with ASD and its causes. Participants free-listed, ranked, and justified their responses. Mixed methods analyses utilized saliency scores to calculate responses. Deductive interview analyses justified participants' responses. Salient responses for ASD perceptions included specific characteristics about the child (e.g., loving) and perceptions about lack of resources. Salient responses for ASD causes were vaccines, genetics, and a combination of genetics and environment. Inductive analyses revealed distinct beliefs about social stigma, child characteristics, factors supporting development, and parents' emotional stress. Interpretations linked these beliefs to promising adaptations in diagnosis and treatment.

Journal of autism and developmental disorders, 2018 · doi:10.1007/s10803-017-3457-x