Service Delivery

Racial and ethnic group differences in service utilization in children with autism spectrum disorder: The role of parental stigma.

Rivera-Figueroa et al. (2025) · Autism : the international journal of research and practice 2025
★ The Verdict

Autism service gaps are small and mostly about money—except for Asian families where stigma slashes hours.

✓ Read this if BCBAs running clinic or home programs with diverse preschoolers.
✗ Skip if School-only BCBAs who don’t control intake or funding.

01Research in Context

01

What this study did

Karla and colleagues asked 1,200 U.S. parents of autistic kids to fill out a short survey. They wanted to know if race or stigma predicted how many hours of ABA, speech, or other services the child got.

Parents checked boxes for White, Black, Latino, or Asian background and answered questions like "I feel judged when I ask for help." The team then compared service hours across groups.

02

What they found

Service gaps across races were small—only a few hours per week difference. Money and insurance explained most of those gaps, not stigma.

The one exception: Asian parents who reported high stigma received 40 % fewer hours. For them, feeling judged directly cut service use.

03

How this fits with other research

Leng et al. (2024) looked at migrant kids in China and also found late diagnosis and fewer services. Their work extends Karla’s by showing that legal status can act like race does here—another barrier beyond money.

McCauley et al. (2018) surveyed autistic adults and saw a mirror image: people who needed therapy the most had the hardest time getting it. Together the papers sketch a life-span problem—service gaps start in preschool and continue into adulthood.

Xu et al. (2026) counted dollars, not stigma, and found Chinese families lose more wages than they pay in medical bills. Pairing their number crunch with Karla’s stigma data gives you the full picture: economics hurts everyone, but shame only shrinks services for Asian families.

04

Why it matters

If you serve Asian families, add a five-minute stigma check to intake. Ask, "Do you feel judged when you ask for help?" A yes flags risk of low hours. For all other races, focus on cash aid, Medicaid waivers, and flexible scheduling—those moves erase most racial gaps.

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Add one question—"I feel judged when I ask for services"—to your parent intake form and fast-track extra funding help for anyone who scores high.

02At a glance

Intervention
not applicable
Design
survey
Sample size
764
Population
autism spectrum disorder
Finding
mixed
Magnitude
small

03Original abstract

Racial and ethnic disparities in service utilization in autism are widely documented. Autism-related parental stigma may play a role if parents from racial/ethnic minoritized backgrounds experience dual stigma from autism and from membership in a marginalized group. This study examines racial/ethnic differences in autism-related stigma and compares the impact of stigma on service utilization in a large, diverse sample of US-based parents of autistic children (final sample = 764; White 41.6%, Black 16.6%, Latino/a/x/Hispanic 20.9%, Asian 7.5%, Multiracial 9.6%, Native American 1.8%, Pacific Islander 0.5%, Middle Eastern 0.2%, and Other 0.2%). Parents completed online surveys assessing affiliate and community stigma, service utilization, and perceived unmet treatment needs. Small but significant racial/ethnic group differences emerged in some aspects of stigma and service utilization. Specifically, Asian and Latino/a/x parents were less likely to fully engage in recommended services; Asian parents endorsed less service availability; Latino/a/x and multiracial parents reported more unmet needs; and Asian and White parents reported significantly more affiliate stigma. There was little indication that stigma contributed to racial/ethnic differences in service utilization, except for Asian families. Results indicate that socioeconomic factors interact with race/ethnicity to impact service use and stigma.

Autism : the international journal of research and practice, 2025 · doi:10.1177/13623613241298043