Service Delivery

Adults With IDD in Supported Accommodation During COVID-19 Lockdown: The Families' Perspective.

Shpigelman et al. (2024) · American journal on intellectual and developmental disabilities 2024
★ The Verdict

Family caregivers turned into lifelines during COVID-19 lockdowns—give them a formal seat at the residential-service table before the next crisis hits.

✓ Read this if BCBAs who consult to or supervise supported-living homes for adults with IDD.
✗ Skip if Practitioners serving only children living at home or clients without residential supports.

01Research in Context

01

What this study did

Shpigelman et al. (2024) interviewed families of adults with intellectual disability who live in supported homes. They asked how lockdown rules changed contact and care during COVID-19. The team looked for common themes in the answers.

02

What they found

Parents said they became the only reliable link between their adult child and the outside world. Visits stopped or were tightly limited. Families want clear written plans for future crises.

03

How this fits with other research

Kunze et al. (2025) show most adults with IDD already have tiny, family-only support networks. The lockdown simply exposed how fragile those networks are. Coe et al. (1997) warned that earthquakes can strand people with IDD when services fail; the new study proves a health lockdown creates the same danger. Moya et al. (2022) argued that COVID-19 hurt this group the most; the caregiver voices here supply the lived-story evidence behind that claim.

04

Why it matters

If you work in residential services, write a one-page crisis contact plan today. List each resident’s key family member, phone, email, and preferred visit format. Share it with every shift so the next emergency does not cut clients off from their main allies.

Free CEUs

Want CEUs on This Topic?

The ABA Clubhouse has 60+ free CEUs — live every Wednesday. Ethics, supervision & clinical topics.

Join Free →
→ Action — try this Monday

Draft a crisis communication sheet for each client: primary family contact, backup number, and agreed visit plan.

02At a glance

Intervention
not applicable
Design
qualitative
Sample size
19
Population
intellectual disability
Finding
not reported

03Original abstract

The present study aims to understand and describe family caregivers' perceptions and experiences regarding contact and relationships with their adult relatives with intellectual and developmental disabilities (IDD) living in supported accommodation during the COVID-19 lockdown. A qualitative phenomenological approach was applied in which 19 Israeli family caregivers (parents and siblings) were interviewed. Inductive thematic analysis revealed themes at the microsystem level (the resident, the caregiver, and their relationship), and at the mesosystem level (the caregivers' interactions with service providers and other residents' families). The findings highlight the pivotal role of family caregivers in times of uncertainty and the need to develop explicit policies and mechanisms to facilitate family engagement in the residents' lives.

American journal on intellectual and developmental disabilities, 2024 · doi:10.1352/1944-7558-129.3.215