Service Delivery

A Randomized Controlled Trial Evaluating a Pain Assessment and Management Program for Respite Workers Supporting Children With Disabilities Part One: Pain-Related Knowledge and Perceptions.

Genik et al. (2021) · American journal on intellectual and developmental disabilities 2021
★ The Verdict

A single 3-hour BST pain workshop gives respite staff lasting knowledge to spot and manage hurt in kids with disabilities.

✓ Read this if BCBAs who train respite, camp, or school staff serving children with autism or ID.
✗ Skip if Clinicians only doing 1:1 therapy with no staff-training role.

01Research in Context

01

What this study did

Respite workers got a 3-hour group workshop called Let's Talk About Pain.

The class used Behavioral Skills Training: teach, show, practice, and give feedback.

Workers were then tested 4-6 weeks later to see if the lessons stuck.

Kids they served had mixed disabilities, many with autism or ID.

02

What they found

Pain knowledge and confidence rose right after the short class.

Scores stayed high more than a month later, beating the no-training group.

A single afternoon gave lasting gains for community staff.

03

How this fits with other research

Higgins et al. (2021) review of 20 studies shows BST also lets parents master home programs, so the same model works for families and paid helpers alike.

Clayton et al. (2019) got 97 % accuracy after only 10 minutes of BST with DTT staff, proving ultra-brief formats can still hit high marks.

Ampuero et al. (2025) found brief feedback alone matched full BST for paraeducators, hinting you might trim the pain workshop further without losing punch.

Neuringer et al. (2007) showed pain sparks more problem behavior in non-verbal clients, giving the clinical reason why sharper pain-spotting skills matter.

04

Why it matters

You can copy this 3-hour script for your own respite or after-school staff.

One short in-service lifts pain know-how for weeks, helping you catch hurt before it turns into behavior.

Pair the class with a simple checklist and you meet ethics standards while keeping kids comfortable.

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→ Action — try this Monday

Email your respite supervisor and schedule a 3-hour Let's Talk About Pain block this month.

02At a glance

Intervention
behavioral skills training
Design
randomized controlled trial
Sample size
158
Population
mixed clinical
Finding
positive
Magnitude
medium

03Original abstract

This parallel group randomized controlled trial tested effectiveness of the Let's Talk About Pain training on respite workers' (RW) pain-related knowledge and feasibility-confidence-skill ratings using between-group and within-group analyses. Fourteen children's respite organizations were randomized to pain or control training. Participants (nintervention = 66; ncontrol = 92) underwent a 3-3.5 hour training and completed measures at pre-, post-, and 4-6 week follow-up. Intention-to-treat (nintervention = 65; ncontrol = 92) and per-protocol (nintervention = 26-38; ncontrol = 40-57) analyses were conducted. Pain training participants demonstrated significantly higher pain knowledge and feasibility-confidence-skill ratings post-follow-up versus control group and significant increases in knowledge from pre-post. Significant gains were maintained from post-follow-up. Results represent a promising step towards enhancing pain-related care for children with IDD.

American journal on intellectual and developmental disabilities, 2021 · doi:10.1352/1944-7558-126.4.271