Assessment & Research

Physical illness, pain, and problem behavior in minimally verbal people with developmental disabilities.

Carr et al. (2007) · Journal of autism and developmental disorders 2007
★ The Verdict

Pain and illness are setting events for problem behavior in minimally verbal clients—screen first, treat second.

✓ Read this if BCBAs working with non-verbal children or adults in school, clinic, or residential settings.
✗ Skip if Practitioners serving fully verbal clients who can report pain themselves.

01Research in Context

01

What this study did

Neuringer et al. (2007) watched problem behavior on days when clients felt sick and days when they felt fine. All clients had developmental delays and used few or no words. The team compared behavior counts with daily pain ratings.

They treated each client as their own control. No new treatment was tested. The goal was to see if pain and illness act as hidden triggers for hitting, screaming, or self-injury.

02

What they found

Problem behavior happened more often and more intensely on sick days. Higher pain scores matched higher behavior counts. The link showed up in every client tracked.

In plain words: when the body hurts, behavior worsens.

03

How this fits with other research

Fahmie et al. (2013) extends this message to 255 institutionalized adults. They found that 18 % showed signs of pain, yet 85 % had no pain medicine ordered. Together the two papers paint the same picture: pain is common, missed, and expressed through behavior.

Eberhart et al. (2006) used the same single-case method but tracked blood glucose instead of pain. High glucose also paired with more problem behavior. The pair of studies shows that any hidden body stress—pain or sugar swings—can push behavior up.

Scherf et al. (2008) looked at Medicaid records and saw kids with autism had seven times more self-inflicted injuries. Their data line up with Neuringer et al. (2007): when health is off, behavior becomes riskier.

04

Why it matters

Before you write a behavior plan, rule out pain or illness. Check for fever, ear infections, constipation, or injuries. Add a quick pain scale to your intake forms. Track sick days on your behavior graphs. A simple note like “client had cold” can explain a sudden spike and save weeks of useless intervention.

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Add a two-question health check to your session note: any signs of pain today? any illness symptoms? Track yes answers next to behavior counts.

02At a glance

Intervention
not applicable
Design
case series
Population
developmental delay
Finding
positive

03Original abstract

There is growing interest in the role that physical illness and pain might play in exacerbating problem behavior in individuals with developmental disabilities. Assessment of these factors, however, is often difficult since many individuals have minimal verbal communication skills. In response to this difficulty, we developed a sequential method of assessment involving retrospective and prospective measurement strategies. We found that the frequency and intensity of problem behavior was greater on "sick" days than on "well" days. Further, the higher the level of pain, the greater was the frequency and intensity of problem behavior. We discuss the concept of pain as a setting event for problem behavior and the intervention strategies that follow from this conceptualization.

Journal of autism and developmental disorders, 2007 · doi:10.1007/s10803-006-0176-0