Practitioner Development

Talking about autism-thoughts for researchers.

Robison (2019) · Autism research : official journal of the International Society for Autism Research 2019
★ The Verdict

Speak and write about autism the way your client asks you to—no labels without consent.

✓ Read this if BCBAs who write reports, present at team meetings, or post on social media.
✗ Skip if Practitioners looking for new teaching programs or data sheets.

01Research in Context

01

What this study did

Robison (2019) is a short think-piece, not an experiment.

The author asked: when we write or talk about autism, are our words kind and accurate?

The paper gives plain tips for researchers so they stop saying things that hurt autistic people.

02

What they found

There is no data table.

The finding is a warning: language that sounds clinical or pitiful can spread stigma.

Elder urges person-centered phrases like “autistic adult” or “person on the spectrum” only if the person likes it.

03

How this fits with other research

Shogren (2024) widens the same plea to all intellectual disability work. That paper says “do research with, not on” and echoes Elder’s call to share power.

Hull et al. (2021) show the idea in action. They let autistic adults set sexuality research goals, proving respectful talk can steer the whole agenda.

Neuman (2018) mirrors the method. Both papers are short, punchy position pieces that tell behavior analysts to drop jargon and speak like a neighbor.

04

Why it matters

Your intake form, progress note, or parent email is a mini-publication. Swap “low-functioning” for “needs daily support,” ask clients their preferred label, and read it back to them. These micro-moves cut stigma and build trust before the first trial begins.

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Add a one-line preference box to your intake form: “What words do you use for your autism?” Use their answer in every note.

02At a glance

Intervention
not applicable
Design
theoretical
Population
autism spectrum disorder
Finding
not reported

03Original abstract

At the 2019 strategic planning meeting the International Society for Autism Research (INSAR) board discussed the question of appropriate language to be used when speaking or writing about autism or affected individuals. Board members articulated a wide range of views on this subject, making clear that there is no single simple answer. This commentary was inspired by that discussion. It is by John Elder Robison who is both an INSAR board member and an individual diagnosed with autism. Autism Res 2019, 12: 1004-1006. © 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: How should researchers talk about autism? Personal reflections on writing and speaking about autism, with particular regard for affected individuals, be they autistic people, people with autism, or family members. This commentary is authored by John Elder Robison who is both an INSAR board member and an individual diagnosed with autism.

Autism research : official journal of the International Society for Autism Research, 2019 · doi:10.1002/aur.2119