Practitioner Development

Disability, disorder, and identity.

Wehmeyer (2013) · Intellectual and developmental disabilities 2013
★ The Verdict

Drop 'disorder' from your vocabulary—talk about real-life supports instead.

✓ Read this if BCBAs who write reports, sit on diagnostic teams, or teach staff.
✗ Skip if Clinicians looking for an intervention manual or data sheets.

01Research in Context

01

What this study did

Wehmeyer (2013) looked at the words we use in the ICD. The author asked: does calling intellectual disability a 'disorder' hurt the person?

The paper is a think piece, not an experiment. It argues we should drop the label 'disorder' and talk about how the person fits with their world instead.

02

What they found

The author says the word 'disorder' can make people see only the deficit. It can also make adults with ID feel broken.

The fix is to speak in everyday function: what helps the person learn, work, and play.

03

How this fits with other research

Thurm et al. (2022) updated the debate. They tell clinicians exactly when to use 'condition,' 'disorder,' 'syndrome,' 'disease,' or 'disability.' The 2022 paper keeps 'disorder' for some cases, while Wehmeyer (2013) wants the word gone. The gap is mostly about setting: Audrey gives tight clinical rules; L worries about stigma.

Ellis (2013), written the same year, looks at court reports. It also says: talk about what the person can do, not just the label. The two papers back each other up.

Tassé et al. (2013) went a step further. That team wrote the AAIDD advice sent to ICD-11. Their draft swaps 'mental retardation' for 'intellectual disability' and adds support levels. In short, J et al. turned L's idea into a policy draft.

04

Why it matters

When you write an assessment, an IEP, or talk to parents, your words shape identity. Swap 'Johnny has a disorder' for 'Johnny learns best with pictures and extra time.' This tiny edit keeps the team focused on supports, not stigma. Try it in your next report.

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Write one sentence in your next note that describes what the client needs, not what label they carry.

02At a glance

Intervention
not applicable
Design
theoretical
Population
intellectual disability
Finding
not reported

03Original abstract

The World Health Organization's International Classification of Diseases (ICD) is the most important diagnostic tool, worldwide, to ensure that people with intellectual and developmental disabilities receive the supports they need to live richer, fuller lives. And yet, the ICD has naming conventions that create a conundrum for the field, requiring that all "conditions" in the ICD be named as a "disorder." This article discusses the effect of naming on how people with intellectual disability are perceived by others and how they perceive themselves. The importance of continuing to move the field toward the adoption of functional/person-environment fit models of disability is discussed.

Intellectual and developmental disabilities, 2013 · doi:10.1352/1934-9556-51.2.122