Autism & Developmental

Sexuality in the Autism Spectrum Study (SASS): Reports from Young Adults and Parents.

Hartmann et al. (2019) · Journal of autism and developmental disorders 2019
★ The Verdict

Young adults with autism are sexually active and at risk, but parents under-report it, so you must ask the client directly.

✓ Read this if BCBAs serving teens or adults with autism in any setting
✗ Skip if Clinicians working only with young children or severe-profound cases

01Research in Context

01

What this study did

Hartmann et al. (2019) asked young adults with autism and their parents to fill out a survey. The survey asked about sexual experiences and any unwanted or unsafe events.

The team compared what the adults said with what their parents thought had happened.

02

What they found

The adults reported more sexual activity and more victimization than parents knew about.

Parents often thought their child was not interested in sex or was not at risk.

03

How this fits with other research

Byers et al. (2013) found that high-functioning autistic singles felt good about their sex lives. This seems to clash with Kathrin’s finding that parents under-rate sexual activity. The gap is explained by who answered: Sandra asked the adults, while Kathrin compared adult answers to parent guesses.

Delgado-Lobete et al. (2020) extended Kathrin’s work by adding a neurotypical group. They showed parents of autistic adults talk about sex just as often as other parents, but still think their child is less ready.

Bauminger-Zviely et al. (2020) link these hidden risks to real harm: autistic adults have eight times the PTSD rate of typical adults, with females hit hardest.

04

Why it matters

If you only ask parents, you will miss sexual behavior and victimization. Add direct questions to your client’s program. Use simple visuals and role-play to teach consent, safe dating, and how to report abuse. Schedule private time so the client can speak without the parent present.

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02At a glance

Intervention
not applicable
Design
survey
Sample size
100
Population
autism spectrum disorder
Finding
not reported

03Original abstract

Previous research indicates that although those with ASD desire sexual relationships, they may not effectively engage in romantic and intimate interactions. The purpose of this study was to compare reports from young adults with ASD and parents from the same families on the young adult's sexual behavior, experiences, knowledge, and communication. 100 young adults (18-30 years) and parents completed an online survey. Results indicated that young adults reported more typical privacy and sexual behaviors, and higher sexual victimization than their parents reported on their behalf. Our findings indicated that individuals with ASD desire and pursue sexual relationships typical of most people and suggest the need for sex education and communication about topics generally covered for neurotypically developing young adults.

Journal of autism and developmental disorders, 2019 · doi:10.1007/s10803-019-04077-y