Autism & Developmental

Self-reported Health-Related Quality of Life (HRQOL) and Anxiety Among Greek School-Age Siblings of Individuals with Autism Spectrum Disorders (ASD) in Relation to Parental Mental Health and Social Support.

Koukouriki et al. (2020) · Journal of autism and developmental disorders 2020
★ The Verdict

Greek school-age siblings of children with autism feel more anxious and less healthy—ease their load by treating parent anxiety and boosting family support.

✓ Read this if BCBAs who serve school-age clients with autism and their families.
✗ Skip if Clinicians working only with adult clients or in single-client sessions with no family contact.

01Research in Context

01

What this study did

Koukouriki et al. (2020) asked Greek school-age brothers and sisters of kids with autism how anxious they felt and how healthy their life felt. They also asked moms and dads about their own anxiety and about how much help they get from friends, family, and services. The team used paper surveys, not treatment.

The sample was one group of families in Greece. No one was given therapy as part of the study.

02

What they found

Siblings of children with autism scored higher on anxiety and lower on quality-of-life than siblings of typically developing children. When parents reported high anxiety, their children’s anxiety also ran high. When families felt they had strong social support, the siblings’ quality-of-life improved.

03

How this fits with other research

İ et al. (2024) extends this picture. During COVID lockdowns in Turkey, parental social support dropped while child hyperactivity rose, showing the same link between support and child adjustment in a crisis.

Wang et al. (2025) zooms in day-by-day. Daily diaries from Chinese parents revealed that each jump in social support predicted better mood the same day and the next, backing the Greek claim that support matters quickly.

Gallagher et al. (2012) adds a physical angle. Caregivers of kids with developmental disabilities had lower blood pressure when they felt more supported, matching the Greek finding that support boosts well-being across family members.

04

Why it matters

You already screen the child with autism. Add a two-minute sibling anxiety check at intake. Hand parents a brief social-support map: list local grandparent hours, parent groups, and respite vouchers. Lowering parent anxiety and raising family support can shrink sibling worry without extra therapy hours.

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Add two questions to your parent form: 'How anxious have you felt this week?' and 'Name two people you can ask for help this month.' Use answers to guide referrals.

02At a glance

Intervention
not applicable
Design
survey
Sample size
233
Population
autism spectrum disorder, neurotypical
Finding
negative

03Original abstract

Health-Related Quality of Life (HRQOL) and anxiety were measured in 233 school-age siblings of individuals with Autism Spectrum Disorders (ASD) and siblings of Typically Developing (TD) children in Greece. The aim of the study was to investigate for any association between siblings' HRQOL or anxiety and parental mental health, perceived social support as well as major demographic factors. It was found that the disability group (ASD-sibs) showed elevated anxiety levels and poorer HRQOL than controls. In hierarchical multiple regression models, the anxiety of ASD-sibs was significantly associated with parental anxiety independent of parental perceived social support and demographic factors, whereas the HRQOL of ASD-sibs was associated with perceived social support independent of parental physical and mental health and demographic factors.

Journal of autism and developmental disorders, 2020 · doi:10.1007/s10803-020-04395-6