School-aged functioning of children diagnosed with autism spectrum disorder before age three: parent-reported diagnostic, adaptive, medication, and school placement outcomes.
One in five toddlers told they have autism may not keep the label by school age, so keep checking skills and supports every year.
01Research in Context
What this study did
Latham et al. (2014) phoned parents of 80 children who had been told their child had autism before age three.
Parents answered questions about diagnosis, daily-living skills, medicines, and classroom setting when the kids reached elementary school.
The team simply described the range of outcomes; they did not test any treatment.
What they found
About one in five children no longer carried the autism label at school age.
The rest split into two camps: some needed only light support, others needed heavy support and many still took medication.
Adaptive skills, social skills, and school placements varied widely in both groups.
How this fits with other research
Giserman-Kiss et al. (2020) later tracked a larger, more diverse group and saw 88% keep the diagnosis—higher than the 80% here. The difference likely comes from longer follow-up and tighter criteria, not a true clash.
Towle et al. (2018) followed the same 80 kids and showed those who kept the autism label received more speech, aide, and special-ed hours—evidence that early labels drive later services.
Fujiura et al. (2018) watched adaptive scores climb in early grades then flatten in middle school, hinting that the wide skill gaps seen here may harden if we stop teaching daily-living skills after third grade.
Why it matters
You cannot treat “autism” as a single track. Some toddlers will outgrow the diagnosis, others will need full support, and you will not know who is who on day one. Build flexible plans: teach communication and self-care early, reassess adaptive and social skills every year, and adjust service minutes as the child’s profile—not the original label—changes.
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02At a glance
03Original abstract
Eighty children with early autism spectrum disorder (ASD) diagnoses (under 36 months) were identified using a chart abstraction protocol applied to early intervention charts. Parents filled out questionnaires by mail when the children were school-aged (ages 6-16 years). Similar to previous studies, approximately 20% no longer had ASD diagnoses; the other participants were assigned to Moderate/Severe versus Mild ASD outcome groups. These three groups were compared across several variables, including diagnostic features and functional features including adaptive behavior, social experiences, medication use, and school placement. The findings expand our knowledge about outcomes in longitudinal studies of children with ASD, as well as provide support for using relatively indirect methods (chart review, parent questionnaire) to gather this type of information.
Journal of autism and developmental disorders, 2014 · doi:10.1007/s10803-013-1997-2