Perspectives of autistic adolescent girls and women on the determinants of their mental health and social and emotional well-being: A systematic review and thematic synthesis of lived experience.
Autistic girls and women say stigma and a world that ignores their needs are the heaviest weights on their mental health.
01Research in Context
What this study did
O'Connor et al. (2024) pooled interviews and focus groups with autistic girls and women. They asked one question: what shapes your mental health every day?
The team read every quote, grouped similar ideas, and counted how often each theme appeared. They kept only the themes that showed up across many studies.
What they found
Two big forces came up again and again. First, the world is not built for autistic minds. Second, people treat being autistic like something shameful.
Girls said these two pressures feed anxiety, low mood, and burnout more than autism traits themselves.
How this fits with other research
Han et al. (2022) saw the same sting of stigma in a wider autistic group. Their review adds camouflaging, disclosure games, and identity reframing as ways people try to cope.
Day et al. (2021) gave numbers to the story. In their teen survey, more camouflaging equaled more depression and anxiety, with girls hit hardest. This supports Ag’s lived-experience claim that hiding autism to dodge stigma hurts mental health.
Lovelace et al. (2022) flags a blind spot: almost no studies center Black autistic girls. Ag’s synthesis is broad; teams should now repeat the question with girls who face both racism and autism stigma.
Why it matters
If stigma and poor fit with everyday systems drive suffering, your behavior plan must do more than teach skills. Reduce camouflaging demands, ask schools for sensory-friendly spaces, and add stigma-busting lessons for peers. Measure mood before and after these changes; you may see bigger gains than from social-skills drills alone.
Want CEUs on This Topic?
The ABA Clubhouse has 60+ free CEUs — live every Wednesday. Ethics, supervision & clinical topics.
Join Free →Start each session with a quick choice of lighting, seating, or noise level to show the environment can flex for them.
02At a glance
03Original abstract
Difficulties with mental health and low levels of well-being are more common among autistic girls and women than non-autistic people, but we do not fully understand why. Research does not focus enough on what autistic girls and women could tell us about this. This review aims to summarise the studies where autistic girls and women explain things that affect their mental health and well-being to help us understand how to prevent these difficulties from developing. Three research databases were searched to find possibly relevant studies. There were 877 studies found, which two researchers screened according to particular criteria. They found 52 studies that could be included in this review. One researcher evaluated the quality of these studies and extracted the key information from them. This review summarises the views of 973 autistic girls and women aged between 13 and 70+. The findings from the 52 studies were analysed, and we found many factors that affect the mental health and well-being of autistic girls and women. These factors fall into two categories: (1) difficulties living in a world not designed for autistic people and (2) the impact of stigma due to being autistic.
Autism : the international journal of research and practice, 2024 · doi:10.1177/13623613231215026