Autism & Developmental

Brief Report: Learning About Autism: Is the Source of Autism Knowledge Associated with Differences in Autism Knowledge, Autism Identity, and Experiences of Stigma.

Bury et al. (2024) · Journal of autism and developmental disorders 2024
★ The Verdict

Peer online sources link to better autism knowledge and lower self-stigma in autistic adults.

✓ Read this if BCBAs serving autistic teens or adults in clinic, college, or telehealth settings.
✗ Skip if Clinicians working solely with non-verbal young children or parent-only sessions.

01Research in Context

01

What this study did

Andrews et al. (2024) asked autistic adults where they learn about autism.

Choices were blogs, social media, doctors, or family.

The team then compared knowledge scores, autism pride, and self-stigma across groups.

02

What they found

People who learned from online peers had the most accurate facts.

They also felt prouder of being autistic and blamed themselves less.

Traditional sources gave weaker knowledge and heavier shame.

03

How this fits with other research

Han et al. (2022) show stigma is common and coping tactics are hit-or-miss.

Kim et al. (2024) add that most stigma trainings are one-off videos with thin proof.

Riccio et al. (2021) found teens told by parents view autism more positively than teens kept in the dark.

Andrews et al. (2024) extend this line: peer-run online spaces can keep the positive identity going into adulthood.

04

Why it matters

You can’t control what clients read at 2 a.m., but you can guide them.

Start asking, “Where do you get your autism news?” during intake.

If they name only doctors, hand them vetted blogs or hashtags to balance the picture.

Five minutes of curating sources may cut shame and boost engagement faster than months of talk therapy.

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Add one question about preferred autism information sources to your intake form and stock a short list of peer-run sites to offer when needed.

02At a glance

Intervention
not applicable
Design
survey
Sample size
198
Population
autism spectrum disorder
Finding
positive

03Original abstract

People on the autism spectrum can learn about autism from various sources, likely differing in the information, portrayal, and discussion they offer. The present study investigates where autistic people learn about autism, and whether their information source is associated with their level of autism knowledge, perceptions of stigma, and development and expression of an autism identity. A survey of 198 Australian adults with an autism diagnosis showed that learning about autism from conventional sources (e.g., professionals, parents) was associated with more internalised stigma, lower endorsement of special abilities and autism identity, whereas online blogs and social media showed the opposite pattern as well as more accurate knowledge of autism. The findings raise questions about how authoritative sources of information discuss autism.

Journal of autism and developmental disorders, 2024 · doi:10.1177/0739532920969887