Autism & Developmental

Perceptions of social support: comparisons between fathers of children with autism spectrum disorder and fathers of children without developmental disabilities.

Seymour et al. (2020) · Journal of intellectual disability research : JIDR 2020
★ The Verdict

Autism dads feel support is out of reach, and that lack of someone to talk to drives their stress.

✓ Read this if BCBAs running parent training or home programs with autism families.
✗ Skip if Clinicians who only treat adults or work in school-only roles with no parent contact.

01Research in Context

01

What this study did

Heald et al. (2020) asked dads to fill out a survey. One group had children with autism. The other group had children without disabilities.

The survey asked how easy it is to get social support. It also asked about stress and sadness.

02

What they found

More than 70 % of autism dads said support is hard to reach. They also felt more upset than the other dads.

The kind of support that mattered most was someone to talk to and give advice.

03

How this fits with other research

Ohan et al. (2015) asked both moms and dads in autism families the same questions. Moms listed more unmet needs than dads. The new study shows dads still feel the pinch when you compare them to typical fathers.

Sticinski et al. (2022) looked at single caregivers of teens and adults with autism. They found even lower support scores. The father data now sit in the middle: better than single caregivers, worse than typical parents.

Bromley et al. (2004) showed moms of young kids with autism felt high distress. The father picture looks similar two decades later, pointing to a long-running family need.

04

Why it matters

If you work with autism families, do not assume dads are fine. Ask each parent separately, "Who do you talk to when things get hard?" If the answer is "no one," add parent-to-parent groups, dad meet-ups, or short check-in calls to the behavior plan. Five minutes of real talk can cut stress and keep the whole family in therapy longer.

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Add one question to your intake: "Dad, who do you talk to about autism stuff?" If the list is short, give a local dad support group number before you leave.

02At a glance

Intervention
not applicable
Design
survey
Sample size
6737
Population
autism spectrum disorder, neurotypical
Finding
negative

03Original abstract

BACKGROUND: Research highlights the need for ongoing social support of mothers of children with Autism spectrum disorders (ASD). Despite recognised differences between mothers and fathers, little is known about the particular social support needs of fathers of children with ASD. Broadly, this study aimed to explore the support needs of fathers of children with ASD compared with fathers of children without a disability (W/OD) and the relation between social support, psychological distress and sociodemographic factors. METHOD: Drawing from a large, nationally representative community sample of children, 159 fathers of children with ASD were identified, where 6578 fathers of children W/OD were used as a comparison sample. RESULTS: Over 70% of fathers of children with ASD reported that support was inaccessible and were significantly more likely to report so compared with fathers of children W/OD. Emotional/informational social support was the strongest social support domain associated with fathers' experiences of psychological distress. CONCLUSIONS: This study provided important insight into the social support needs of fathers of children with ASD.

Journal of intellectual disability research : JIDR, 2020 · doi:10.1111/jir.12704