Bedouin fathers of children with developmental disabilities-Stress, stigma and collaboration with professionals.
Bedouin fathers who feel judged or overwhelmed keep their distance from professionals, especially when their child has multiple diagnoses.
01Research in Context
What this study did
Researchers gave a short survey to Bedouin fathers who have a child with a developmental disability. They asked how much stigma and stress the dads felt and how often they worked with teachers, doctors, or therapists.
The team also wrote down the child’s age at diagnosis, any extra diagnoses, and the father’s own age. They wanted to see which of these things made teamwork with professionals go up or down.
What they found
Fathers who felt more stigma or stress said they worked less with professionals. The link was even stronger when the child had more than one diagnosis, when diagnosis came late, or when the dad was older.
In short, shame and pressure push dads away from help, and extra child needs widen the gap.
How this fits with other research
Manor-Binyamini et al. (2021) ran the same survey with Bedouin mothers and got the same pattern: stigma hurts teamwork, good quality of life helps. Swapping "mom" for "dad" did not change the story, so the culture, not gender, drives the result.
Tsao et al. (2003) looked at Arab mothers in northern Israel years earlier. They found formal services added no extra benefit once informal support was counted. That sounds opposite, but the 2003 study asked "Do services help stress?" while the new study asks "Do stress and stigma stop dads from using services?" Different questions, same takeaway: feelings steer service use.
Heald et al. (2020) surveyed fathers of children with autism worldwide and also saw high stress and low support. The Bedouin data now show this father stress pattern holds in a tight-knit, minority setting too.
Why it matters
If you serve Bedouin or other minority families, check for stigma first. A simple question like "Do you feel judged in the community?" can flag dads who may dodge meetings. Offer low-stigma options: home visits, male staff, or WhatsApp check-ins. Pair these with praise for any small step the dad takes; lowering shame can open the door to bigger teamwork later.
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02At a glance
03Original abstract
BACKGROUND: Research has not fully elucidated the challenges experienced by the caregivers of children with developmental disabilities (DDs) in different sociocultural contexts. Studies on parents, especially fathers, of children with DDs in the Middle East are especially rare. Similarly, the subject of collaboration between Bedouin fathers and professionals has seen little research. This study fills these gaps by highlighting the experiences of Bedouin fathers raising children with DDs. AIMS: This study answered the following questions: A) Do stigma and stress affect the collaboration between Bedouin fathers and professionals? B) Do relationships exist between stigma, stress and collaboration? METHODS: Eighty-eight Bedouin fathers of children with DDs completed questionnaires on sociodemographic details, stigma, stress and collaboration between parents and professionals. Data were analysed using Pearson correlations, a correlation matrix and hierarchical linear regression. RESULTS: The findings revealed a significant positive relationship between stigma and stress, a significant negative relationship between stigma and collaboration and a significant negative relationship between stress and collaboration. Three demographic characteristics were associated with greater influence on fathers' collaboration with professionals: 1) comorbidity in s child's diagnosis, 2) age of DD diagnosis and 3) father's age. CONCLUSIONS AND IMPLICATIONS: The findings emphasise the need to develop tailored intervention programmes to assist fathers in reducing their sense of stigma and stress and in increasing their competence in collaborating with professionals.
Research in developmental disabilities, 2025 · doi:10.1016/j.ridd.2024.104902