Autism & Developmental

Infantile autism and puberty.

Gillberg et al. (1981) · Journal of autism and developmental disorders 1981
★ The Verdict

Some autistic children who thrive in grade school regress at puberty—watch for this dip and prep supports early.

✓ Read this if BCBAs working with autistic students in upper elementary or middle-school settings.
✗ Skip if Clinicians serving only toddlers or adults.

01Research in Context

01

What this study did

Doctors in Sweden watched five children with autism who had done well in grade school.

When these kids hit puberty, their old autism signs came roaring back.

The team wrote up each story to show the pattern.

02

What they found

Every child first gained words and play skills, then lost them around age 12.

The doctors say this group may be a special autism subtype that needs its own plan.

03

How this fits with other research

Mhatre et al. (2016) tracked 80 Indian children for ten years. Most kept their gains, but a few slipped back — matching the Swedish cases.

Vinen et al. (2018) saw the same bump in repetitive behaviors at school age, even after strong early ABA.

Glenn et al. (2003) looked only at two years and found little change. The short window missed the late dip that C et al. caught.

Dewinter et al. (2017) add another layer: teens with ASD face new social-sexual demands. If skills drop at puberty, those demands feel even harder.

04

Why it matters

You may have clients who sail through elementary school, then fall apart in middle school. Do not blame yourself or the parents. Schedule extra check-ins at ages 11–13. Add back visual schedules, sensory breaks, and social stories before problems show. Tell the school team to watch for sudden skill loss. Early boosters can keep the child on track.

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→ Action — try this Monday

Add a puberty-risk note to the file of every school-age client who once lost and then regained skills—plan a booster session before the next school year.

02At a glance

Intervention
not applicable
Design
case series
Sample size
5
Population
autism spectrum disorder
Finding
not reported

03Original abstract

While the prognosis for autistic children is generally poor, some show substantial improvement during childhood. In a Swedish sample of five cases deterioration or severe symptom aggravation at the onset of puberty is described that followed earlier improvement. Autistic children with pubertal deterioration may constitute a meaningful subgroup of the syndrome. The matter deserves more attention in future follow-up studies.

Journal of autism and developmental disorders, 1981 · doi:10.1007/BF01531612