Autism & Developmental

How my life is unique: Sibling perspectives of autism.

Burnham Riosa et al. (2023) · Autism : the international journal of research and practice 2023
★ The Verdict

Non-autistic siblings see themselves as part-helper, part-outsider, and they need a quick check-in at every family session.

✓ Read this if BCBAs running parent-training or home-based programs with school-age clients.
✗ Skip if Clinicians who only see the client 1:1 with no family contact.

01Research in Context

01

What this study did

Burnham Riosa et al. (2023) talked with school-age brothers and sisters of kids with autism. They asked open questions about daily life, feelings, and family roles. The team then grouped the answers into three big themes.

No numbers or tests were used—just the siblings' own words.

02

What they found

Siblings said three things kept coming up. First, they often feel like the 'other' child—half helper, half ignored. Second, they swing between feeling super close and feeling shut out from their autistic brother or sister. Third, they see their family as both special and totally normal at the same time.

The mix of pride, worry, and in-between feelings was in every story.

03

How this fits with other research

Schmeer et al. (2021) found the same tug-of-war: siblings gain empathy yet can slide into anxiety or acting-out if no one checks on them. Priscilla's themes add the 'unique-but-ordinary' lens that the earlier paper only hinted at.

Gregory et al. (2020) showed lower school belonging and academic confidence in autism siblings. The new 'role disparity' theme helps explain why—kids feel sidelined at home and that identity follows them to class.

Dudley et al. (2019) saw no difference in sibling-reported warmth across disability types. Priscilla deepens that null result: feelings are indeed similar, but the internal story is more layered than a survey can catch.

04

Why it matters

You already ask parents how they're doing. Now ask the brother or sister too—two extra minutes in a family session. A simple 'What's hard about being a sibling this week?' can reveal if they feel like a mini-parent, a ghost, or both. Use their words to balance home expectations and to plan shared play or homework routines that include them, not just the child with autism.

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Start each parent meeting with one question to the sibling: 'On a scale of 1-5, how much do you feel part of our team this week?' Note the answer and adjust tasks so they have a defined, valued role.

02At a glance

Intervention
not applicable
Design
qualitative
Sample size
9
Population
autism spectrum disorder
Finding
not reported

03Original abstract

The impact of autism on the family is an important area of study. Much of the existing literature has focused on the parent perspective, with less emphasis on the experiences of other family members, especially non-autistic siblings. This study aimed to explore the lived experiences of a sample of nine 8- to 17-year-old non-autistic siblings of children and youth on the autism spectrum. We interviewed non-autistic siblings and analysed the written transcripts. Our results revealed the following themes: (1) Role disparities, different expectations; (2) Connection and disconnection; and (3) Our family is (extra)ordinary. Our study findings highlight siblings' unique and collective perspectives regarding their brother or sister on the spectrum within the broader family unit. We discuss the implications of these results on siblings of autistic children and youth.

Autism : the international journal of research and practice, 2023 · doi:10.1177/13623613221142385