Autism & Developmental

Brief Report: Sibling Feelings Toward their Brother or Sister With or Without Autism or Intellectual Disability.

Shivers et al. (2019) · Journal of autism and developmental disorders 2019
★ The Verdict

Teen siblings feel equally close to brothers or sisters with autism, IDD, or no disability, yet their parents report lower optimism—so assess and support parents even when the teens seem fine.

✓ Read this if BCBAs who conduct family intake or parent training in clinic, school, or in-home settings.
✗ Skip if Practitioners working only with adult clients or single-child families.

01Research in Context

01

What this study did

The team asked teenage brothers and sisters how they feel about their sibling.

Some teens had a brother or sister with autism. Some had one with intellectual disability. Some had a typical sibling.

Everyone filled out the same short survey about closeness, warmth, and annoyance.

Parents answered a separate survey about family life and future hopes.

02

What they found

The teens themselves said their feelings were the same no matter the diagnosis.

Parents told a different story. Moms and dads of kids with autism rated family life as harder and felt less hopeful about the future.

In other words, the kids saw no difference, but the grown-ups did.

03

How this fits with other research

Emmelkamp et al. (1986) asked the same question thirty-three years earlier and also found teens felt positive about their autistic sibling. The new study repeats that null teen finding, so the pattern looks solid.

Yet adult studies tell the opposite story. Cohn et al. (2007) and Heald et al. (2020) show grown siblings of people with autism or IDD feel less close and more depressed than DS siblings. The teen calm may fade with age.

Dudley et al. (2019) extends its own 2019 stress paper by showing teen feelings stay neutral even though those same teens report higher stress than Down-syndrome siblings. Feelings and stress are not the same thing.

04

Why it matters

When you meet a family, ask both the teen and the parent how things are going. The teen may say “fine” while the parent is drowning. Use quick parent mood screens and offer respite or parent training first. For the teen, keep watching; the calm may shift as they age into adult roles.

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Add a two-question parent optimism check to your intake form and schedule parent support if score is low.

02At a glance

Intervention
not applicable
Design
survey
Sample size
97
Population
autism spectrum disorder, intellectual disability, neurotypical
Finding
null

03Original abstract

The present study examined 97 adolescent siblings of individuals with autism spectrum disorder (ASD), intellectual and developmental disabilities (IDD), or no disabilities. Siblings reported on their feelings toward their brother or sister (anxiety, hostility, and positive affect), and parents reported on general optimism, child behavior problems, and perceptions of how the child impacts the family, including the sibling. There were no differences between siblings of individuals with ASD and siblings of individuals with IDD on any sibling self-reported feelings toward their brother or sister, though parents of individuals with ASD reported significantly less optimism and more negative perception of the child's impact on the family than did parents of children with IDD or no disability.

Journal of autism and developmental disorders, 2019 · doi:10.1007/s10803-018-3694-7