Family quality of life and psychological well-being in parents of children with autism spectrum disorders: a double ABCX model.
Boost each parent’s sense of coherence, in gender-friendly ways, to lift family quality of life when kids show tough behaviors.
01Research in Context
What this study did
Sawyer et al. (2014) used the double ABCX model to map how child behavior problems affect parents. They looked at both moms and dads of kids with autism. The team ran path analyses to see if sense of coherence acts like a bridge between tough behaviors and family quality of life.
What they found
Behavior problems did not hit family life directly. Instead, they lowered parents’ sense of coherence first. Lower coherence then cut both family quality of life and psychological well-being. Mothers and fathers showed different paths, so gender matters.
How this fits with other research
Koegel et al. (2014) is a direct replication. Same model, same year, same families. Both papers agree: stronger sense of coherence protects parents from stress.
Hall et al. (2005) is a predecessor. It first applied the double ABCX model to moms of kids with Asperger syndrome. P et al. widened the lens to both parents, showing the model still holds.
Mello et al. (2019) extends the story. They narrowed the age window to preschoolers and added child-functioning predictors. Their work says higher child skills still link to better family quality of life, backing the 2014 indirect path.
Pisula et al. (2010) seems to clash. They found no gender differences in sense of coherence, while P et al. found moms and dads travel different paths. The gap is method: Ewa compared parents of autistic kids to parents of typical kids; P et al. looked only at autism families and modeled separate mom-dad pathways.
Why it matters
You can’t erase every behavior problem, but you can raise parents’ sense of coherence. Start by explaining autism in clear, hopeful terms. Offer small wins they can control, like a five-minute break routine. Ask moms and dads separately what coping tools feel doable; dads may want brief data, moms may want peer talk. Add these quick coherence boosts to your parent-training goals and watch family quality of life rise.
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02At a glance
03Original abstract
BACKGROUND: This study examined family quality of life (FQOL) and psychological well-being from a multidimensional perspective. The proposed model was based on the double ABCX model, with severity of the disorder, behaviour problems, social support, sense of coherence (SOC) and coping strategies as components. METHOD: One hundred and eighteen parents (59 mothers and 59 fathers) with a child diagnosed with autism spectrum disorders (ASD) participated in the study. Separate path analyses were performed to evaluate models of FQOL and psychological well-being for mothers and fathers. RESULTS: In all models, behaviour problems had a negative indirect effect on adaptation (FQOL and psychological well-being) through SOC. For both mothers and fathers, the severity of the disorder and social support played significant roles in FQOL models. Coping strategies were related with adaptation, active avoidance coping with FQOL for fathers and positive and problem-focused coping with psychological well-being for mothers. CONCLUSIONS: The results of this study highlight the value of the multidimensional approach. The specific patterns of results for mothers and fathers contribute to comprehension of the psychological adaptation of parents. Findings could be taken into account in interventions with families.
Journal of intellectual disability research : JIDR, 2014 · doi:10.1111/jir.12042