Psychosocial adaptation of fathers of children with autism, Down syndrome, and normal development.
Fathers of autistic kids use more coping strategies and feel more financial strain, but still adapt well—so include them in family support plans.
01Research in Context
What this study did
Demello et al. (1992) asked the fathers about life with their kids. One third had a child with autism, one third had a child with Down syndrome, and one third had typically developing kids.
The team used surveys and phone interviews. They measured coping efforts, money worries, family routine changes, and overall life satisfaction.
What they found
Fathers of autistic or Down syndrome children said they used more coping skills and felt more money strain. Their daily routines were also more disrupted.
Despite the extra stress, these dads still rated their overall adaptation as positive. The kids' diagnoses did not break family well-being.
How this fits with other research
Geurts et al. (2008) extends this picture. They found fathers of autistic kids take longer to notice social eye cues. This small social-attention gap may explain why the same dads report more coping efforts in R et al.
Lam et al. (2010) also extend the story. They showed that parents of autistic preschoolers want community activities just as much as other parents, but they anticipate more hassle. Together with R et al., the pattern is clear: willingness stays high, but perceived barriers rise.
Koç et al. (2026) look deeper into stress pathways. They show emotional reactivity links inflexibility to burnout. R et al. did not test these inner links, yet both studies point to the same take-home: support the father's coping style, not just the child's behavior.
Why it matters
When you write a parent-training plan, list the father as an active client. Ask about money worries and preferred coping styles. Teach tiny social-attention drills if he seems to miss child cues. Link the family to low-cost community programs so willingness turns into real outings. Strong father adaptation predicts better long-term child gains.
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02At a glance
03Original abstract
Fathers have been largely neglected in previous research of families of autistic children. We compared fathers of 20 autistic, 20 Down syndrome, and 20 developmentally normal children on several measures of psychosocial adaptation. Groups were matched on child's adaptive behavior age equivalent, gender, birth order, family size, and SES. The three groups differed significantly on measures of intrapersonal and family functioning but not on social-ecological variables. Fathers of children with autism or Down syndrome reported more frequent use of wish-fulfilling fantasy and information seeking as coping strategies as well as more financial impact and disruption of family activities than did fathers of developmentally normal children. There were few significant differences between fathers of children with autism and those of children with Down syndrome. These results suggest that fathers adapt relatively well to the demands associated with raising a child with a developmental disability.
Journal of autism and developmental disorders, 1992 · doi:10.1007/BF01058154