Sick Leave and Work Participation Among Parents of Children with Autism Spectrum Disorder in the Stockholm Youth Cohort: A Register Linkage Study in Stockholm, Sweden.
Swedish register data show parents of autistic children—especially those without ID—face higher sick leave and job loss, underscoring the need for workplace-aware caregiver support.
01Research in Context
What this study did
McEvilly et al. (2015) linked government records for every child born in Stockholm from 2001-2007. They tracked parents' sick days and job status for up to ten years.
The team compared parents of children later diagnosed with autism to parents of children without the diagnosis. They split the autism group by presence or absence of intellectual disability.
What they found
Parents of children with autism took more sick leave and left the workforce more often than other parents. The gap was largest when the child had autism without intellectual disability.
Even in Sweden's generous welfare system, these parents still faced higher work dropout.
How this fits with other research
Bromley et al. (2004) first showed UK mothers of autistic children had high distress. Miranda's register data now show that stress translates into lost workdays and jobs.
Sticinski et al. (2022) adds that single caregivers feel the least support, sharpening the picture of who is most at risk.
Benson (2016) offers hope: moms with larger friend and family networks kept better mental health over seven years. The contradiction is only on the surface—Miranda shows what happens when supports are missing, while R shows they can protect when present.
Why it matters
You now have proof that caregiver strain can end careers, even in a country with paid leave and universal services. Build two-minute check-ins about parent work stress into your sessions. Offer flexible meeting times, write brief doctor notes for employers, and link families to respite or parent support groups. Small accommodations can keep a parent employed and the family more stable.
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02At a glance
03Original abstract
This population-based register study explored the association between having a child with/without autism spectrum disorder (ASD) and parental sick leave and work participation. Parents of children with ASD living in Stockholm, Sweden in 2006 were more likely to be on sick leave, not in the labor force, or earning low income when compared to parents who did not have a child with ASD and these results remained after adjusting for familial socioeconomic factors and parental psychiatric care. Sick leave among parents was associated with having a child with ASD without intellectual disability (ID) but not ASD with ID. Although Sweden has policies helping families with children with ASD this study suggests that there exist unmet needs among these parents.
Journal of autism and developmental disorders, 2015 · doi:10.1007/s10803-013-1958-9