Assessment & Research

The relationship between Axis I psychopathology and quality of life in adults with mild to moderate intellectual disability.

Horovitz et al. (2014) · Research in developmental disabilities 2014
★ The Verdict

Every additional Axis I diagnosis cuts quality of life for adults with mild-moderate ID, so routine mental-health screening is part of good behaviour support.

✓ Read this if BCBAs running adult day or residential programmes for people with mild to moderate ID.
✗ Skip if Clinicians who only treat typically developing clients or severe-profound ID without verbal report.

01Research in Context

01

What this study did

Horovitz et al. (2014) asked the adults with mild or moderate intellectual disability about their quality of life.

Trained interviewers used two short checklists to see who met criteria for any Axis I mental-health diagnosis.

Each extra diagnosis got counted so the team could compare groups with zero, one, or several disorders.

02

What they found

Adults with even one Axis I diagnosis scored lower on every quality-of-life domain.

People carrying two or more diagnoses had the worst scores; the drop was large enough to matter in daily life.

The pattern held after the researchers controlled for age, sex, and level of disability.

03

How this fits with other research

Austin et al. (2015) extend these results to people who also have autism. They showed that ASD plus ID piles even more comorbid symptoms onto the same group, backing the "each extra diagnosis hurts" rule.

Kittler et al. (2004) and Dagnan et al. (2005) looked backward, linking recent life events to psychiatric symptoms. Their work hints that stressful events may help explain why some clients in Max’s study collected extra diagnoses.

Libero et al. (2016) shift the lens to teenagers. Parents of youth with ID or autism again reported low quality of life, but chalked it up to challenging behaviour rather than formal diagnoses. The two studies don’t clash—they simply flag different ages and risk factors you can track.

04

Why it matters

If you serve adults with mild-moderate ID, treat every new behaviour change as a possible Axis I disorder. Screen, refer, and track symptoms, because each untreated diagnosis drags quality of life down further. Pair mental-health care with your behaviour plan and you protect the client’s overall well-being, not just single topographies.

Free CEUs

Want CEUs on This Topic?

The ABA Clubhouse has 60+ free CEUs — live every Wednesday. Ethics, supervision & clinical topics.

Join Free →
→ Action — try this Monday

Add one page to intake that asks about mood, anxiety, and psychosis history; flag any yes answers for a psychologist follow-up.

02At a glance

Intervention
not applicable
Design
other
Sample size
138
Population
intellectual disability
Finding
negative

03Original abstract

Individuals with intellectual disability are at risk for impaired quality of life (QOL) compared to the general population. Little is known, however, about factors that may affect QOL in those with intellectual disability. The current study examined the role that Axis I psychopathology plays in the QOL of 138 adults with moderate to borderline intellectual disability. Scores on the Quality of Life Questionnaire (QOL-Q) were compared between those with a Psychotic Disorder, those with a Mood/Anxiety Disorder, and those with no Axis I diagnosis. Additionally, the effects of number of Axis I diagnoses was explored. Those with no Axis I diagnosis were found to have significantly higher QOL-Q scores than those in either diagnostic group. No significant differences were found between the two diagnostic groups. Additionally, those with no Axis I diagnosis were found to have significantly higher QOL-Q scores than those presenting with two or more Axis I diagnoses. The results and their implications are discussed.

Research in developmental disabilities, 2014 · doi:10.1016/j.ridd.2013.10.014