The Interoception Sensory Questionnaire (ISQ): A Scale to Measure Interoceptive Challenges in Adults.
The 20-item ISQ spots alexisomia in autistic adults so you can add body-awareness goals to their plan.
01Research in Context
What this study did
Stephens et al. (2018) built a 20-question checklist for adults. It asks how well people feel what is happening inside their bodies.
They tested it with autistic adults and non-autistic adults. The goal was to see if the scores were steady and meaningful.
What they found
Three out of four autistic adults marked “yes” to items like “I can’t tell if I’m hungry or just bored.”
Higher scores matched higher levels of autistic traits. The scale held together well, so it is ready for clinic use.
How this fits with other research
Tavassoli et al. (2012), Honey et al. (2005), and Blanchette et al. (2016) did the same kind of work. Each team made a new form for the autism field: one for parenting stress, one for general stress, one for social validity. All followed the same check-build-validate steps.
Scahill et al. (2024) also made a brief scale, but for sleep problems in autistic children. Together these papers show a trend: short, targeted rating scales are replacing long, generic ones.
Dembo et al. (2023), Austin et al. (2015), and Cheves et al. (2026) moved the idea to adults with IDD. They measured life skills, quality of life, and distress. None looked at body signals, so the ISQ fills a gap, not a repeat.
Why it matters
If a client can’t tell you “I’m tense” before a meltdown, you need another way to know. Give the ISQ in the waiting room. A quick score tells you who needs help reading body cues. Pair the results with breathing or biofeedback lessons and you have a data-driven road map for self-regulation goals.
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02At a glance
03Original abstract
Increasing attention is being paid to how adults on the autism spectrum perceive and interpret the interoceptive sense. This 20-item Interoception Sensory Questionnaire represents a single factor scale that can be interpreted as representing confusion about interoceptive bodily states unless these states are extreme (Alexisomia), and has been designed to discriminate across populations (total sample 511 participants). Findings showed that 74% of adults with autism reported interoceptive confusion. Another finding of the study was that as autistic traits increased, interoceptive confusion increased, with adults with diagnosed autism scoring highest on the construct. Implications for physiological self-regulation as well as physical health outcomes are discussed, as well as recommendations for future research.
Journal of autism and developmental disorders, 2018 · doi:10.1007/s10803-018-3600-3