Assessment & Research

Re: Caron et al. (2021) sociocultural context and autistics quality of life: A comparison between Quebec and France.

Rodgers (2021) · Autism : the international journal of research and practice 2021
★ The Verdict

Pair the ASQoL with the WHOQoL-BREF and WHO Disabilities module every time you measure quality of life in autistic adults.

✓ Read this if BCBAs who write evaluation reports or track client outcomes with autistic adults.
✗ Skip if Practitioners working only with young children or using different outcome domains.

01Research in Context

01

What this study did

Rodgers (2021) wrote a short letter to the journal Autism.

The letter warned researchers not to use the Autism-Specific Quality of Life scale (ASQoL) by itself.

Jacqui urged teams to add the WHOQoL-BREF and the WHO Disabilities module to get the full picture.

02

What they found

The paper did not collect new data.

It simply reminded readers that the ASQoL was built to work alongside WHO tools, not alone.

Using only the ASQoL can miss parts of life that matter to autistic adults.

03

How this fits with other research

Rodgers (2022) sent the same warning again one year later—showing the field still needs the reminder.

Simões et al. (2015) compared two quality-of-life tools in adults with intellectual disability and also found that different scales capture different slices of life, so picking one matters.

Nevin et al. (2005) laid out early rules for judging any quality-of-life measure; Jacqui’s letter applies those rules directly to autism work.

04

Why it matters

If you screen autistic adults for services or outcomes, do not stop at the ASQoL.

Add the WHOQoL-BREF and the WHO Disabilities module in the same sitting.

This takes ten extra minutes and gives you data you can compare to national norms.

Your report will cover both autism-specific and universal parts of life, which funding bodies now expect.

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Open your last assessment file and add the WHOQoL-BREF to the battery you already use.

02At a glance

Intervention
not applicable
Design
theoretical
Population
autism spectrum disorder
Finding
not reported

03Original abstract

The purpose of this letter to the editors is to highlight to the readership of Autism the recommended use of the Autism Quality of Life measure for research with autistic adults. The Autism Quality of Life was developed for use alongside the WHOQoL-BREF and WHO Disabilities module. The letter raises some concerns about the use of the Autism Quality of Life as a stand-alone measure in a recent study by Caron et al. published in Autism.

Autism : the international journal of research and practice, 2021 · doi:10.1177/13623613211053667