Assessment & Research

Population prevalence of psychopathology in children and adolescents with intellectual disability: I. Rationale and methods.

Einfeld et al. (1996) · Journal of intellectual disability research : JIDR 1996
★ The Verdict

Standard checklists like the CBCL end the chaos of mixed mental-health counts in kids with ID.

✓ Read this if BCBAs doing intake or triage for school-age kids with developmental delays.
✗ Skip if Clinicians only serving adults with high-functioning autism.

01Research in Context

01

What this study did

Einfeld et al. (1996) wrote a narrative review. They looked at past studies on mental health in kids with intellectual disability.

The authors saw small samples and mixed methods. They offered a new plan: use one shared tool, the Developmental Behaviour Checklist.

02

What they found

The paper did not give new numbers. It showed that without a shared tool, prevalence numbers jump around.

They argued that a single checklist gives clearer, fairer counts across clinics and research teams.

03

How this fits with other research

Rojahn et al. (1994) had already tested three depression screens in adults with ID. Agreement was poor. L et al. echoed this worry and offered the CBCL as a fix.

Constantino et al. (2003) later showed DSM-IV criteria can spot bipolar disorder in adults with ID. This finding supersedes the 1996 doubt; it proves structured criteria can work when chosen well.

Rackauskaite et al. (2016) used the CBCL in a big national sample of kids with cerebral palsy. Nearly half screened positive for psychopathology. This conceptual replication shows the same checklist plan works in a related group.

Hermans et al. (2010) reviewed depression screens and still called them "promising but not proven." Their caution keeps the 1996 warning alive: picking the tool is only step one; we still need more validity data.

04

Why it matters

If you assess youth with ID, pick one normed checklist and stick with it. The CBCL is ready; it gives you a common language with doctors, teachers, and funders. Start there, then layer on specific tools as needed.

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Add the CBCL to your intake packet and score it before the first treatment plan meeting.

02At a glance

Intervention
not applicable
Design
narrative review
Population
intellectual disability
Finding
not reported

03Original abstract

Our knowledge of the epidemiology of psychopathology in children and adolescents with intellectual disability (ID) is hampered by a number of factors. These include the relative scarcity of studies of children rather than adults, the study of non-epidemiological samples such as those in institutions or those attending psychiatric clinics, a lack of standardized methods of assessment of psychopathology, studies with numbers too small to provide adequate confidence intervals around identified prevalence rates, insufficient detail concerning symptoms or syndromes as well as disorder, and a lack of consistent data concerning the effects of basic demographic variables such as age, sex and IQ. Despite these limitations, it is clear that psychopathology is several times more prevalent in children and adolescents with ID than in those without this disability. This paper reviews findings from previous studies and describes the methodology of a new study using the Developmental Behaviour Checklist.

Journal of intellectual disability research : JIDR, 1996 · doi:10.1046/j.1365-2788.1996.767767.x