Assessment & Research

Parental identification of early behavioural abnormalities in children with autistic disorder.

Young et al. (2003) · Autism : the international journal of research and practice 2003
★ The Verdict

Parents give an accurate picture of early autism signs across four key areas, so use their recall to guide immediate screening and referral.

✓ Read this if BCBAs who conduct intake assessments or coach families with toddlers.
✗ Skip if Clinicians looking only for long-term severity predictors.

01Research in Context

01

What this study did

Katz et al. (2003) asked parents to look back and list the first unusual behaviors they saw in their child. The team grouped the answers into four buckets: moving, talking, playing with others, and odd fixations.

Parents also told how old the child was when they first worried and how long it took to get an autism diagnosis.

02

What they found

Mothers and fathers could clearly recall early red flags years later. Most families saw problems long before a doctor said "autism."

The gap between first worry and final diagnosis was often months or even years.

03

How this fits with other research

Older parent-survey studies match the new data. Joyce et al. (1988) already showed most parents spot signs before the second birthday. Rutter et al. (1987) found the same timing in Japanese families, proving the pattern crosses cultures.

Later work adds new layers. Barbaro et al. (2012) watched babies grow and confirmed that receptive language lags show up on tests as early as parents said. Redquest et al. (2021) tracked fine-motor delays and linked them to later autism scores, giving the motor domain real predictive teeth.

Warnes et al. (2005) seems to clash at first: they report that parent-remembered onset style does NOT predict later IQ or severity. The difference is focus. L et al. describe what parents see; Emily et al. ask if those stories forecast long-term outcome. Parents are reliable historians, but their timeline does not tell us how severe the child will be at age four.

04

Why it matters

You can trust parent interview data when you write an assessment report. If mom says "he never answered his name at 12 months," treat it as a valid clue. Use the four domains as a quick checklist during intake: ask about movement quirks, words lost, shared play, and repetitive interests. When red flags show up, start screening tools right away instead of waiting for the "let's see" visit. Early action shortens the painful wait families in this study endured.

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Add four quick parent questions to your intake form: any odd movements, lost words, poor shared play, or intense fixations before age two.

02At a glance

Intervention
not applicable
Design
survey
Sample size
153
Population
autism spectrum disorder
Finding
not reported

03Original abstract

The aim of the study was to identify early behavioural abnormalities in children later diagnosed with autistic disorder. Accurate identification of such deficits has implications for early diagnosis, intervention and prognosis. The parents of 153 children with autistic disorder completed a questionnaire asking them to describe early childhood behaviours of concern and to recall the age of onset. Core deficit-linked behaviours were then identified and the ontogeny of their development was noted. Behaviour categories were: (1) gross motor difficulties, (2) social awareness and play deficits, (3) language and communication difficulties, and (4) unusual preoccupations. The findings supported the notion that the nature and prevalence of these deficits depend on age. Consistent with past research, there was a significant interval between parents first noticing abnormalities and the making of a definitive diagnosis. The implications for this delay are discussed.

Autism : the international journal of research and practice, 2003 · doi:10.1177/1362361303007002002