Assessment & Research

Mortality in a hospitalized mentally handicapped population: a 10-year survey.

Puri et al. (1995) · Journal of intellectual disability research : JIDR 1995
★ The Verdict

Adults with ID now live nearly as long as everyone else, but winter chest infections still kill—screen early and question the death certificate data you rely on.

✓ Read this if BCBAs writing health-monitoring protocols for adults with ID in residential or day programs.
✗ Skip if Clinicians focused only on pediatric or outpatient clients.

01Research in Context

01

What this study did

Lowe et al. (1995) tracked every death in one hospital for people with intellectual disability. They counted who died, at what age, and from what cause across ten winters and summers.

The survey included adults with Down syndrome and other IDs who lived in the unit long-term.

02

What they found

Life spans were catching up to the general public. Chest infections were still the top killer, and more deaths happened in winter.

The data signaled good news: longevity was rising.

03

How this fits with other research

Thomas et al. (2021) later showed half of the original death certificates for similar adults were wrong after a second look. This successor finding means K et al.'s 1995 cause-of-death list may need a grain of salt; the real respiratory share could be lower or higher.

Ghaziuddin (1997) zoomed in on the same hospital's clients over 65 and added detail: mobility dropped and internal illnesses piled up before death. The pair together gives a fuller timeline—K et al. show when death occurs, M shows what breaks down earlier.

Antaki et al. (2008) picked up the story a decade later, finding adults with ID now enter aged-care facilities younger and stay longer. Their extend result hints that longer life shown by K et al. can lead to longer, possibly premature, institutional placements.

04

Why it matters

You can expect clients with ID to live almost typical lengths, so plan long-term skill programs and retirement goals. Schedule extra health checks each December through February because winter chest infections remain the biggest threat. Finally, double-check any mortality reports you receive; a later audit often rewrites the listed cause.

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Add a December–February respiratory-check reminder to each client's calendar and train staff to spot early cough or fever.

02At a glance

Intervention
not applicable
Design
other
Population
intellectual disability, down syndrome
Finding
not reported

03Original abstract

The mortality experiences of a hospitalized mentally handicapped population between 1981 and 1990 (inclusive) were examined. A continued trend for increasing longevity in both males and females was found, with mean ages at death now approaching those in the general population. The commonest cause of death was non-tubercular respiratory infection, from which patients were particularly at risk during the months of December to February (inclusive). Patients diagnosed as suffering from psychoses other than schizophrenia and mood disorder had an increased mortality and should be thoroughly investigated for the presence of organic pathology. Epilepsy and Down's syndrome were associated with increased risk of earlier death, although in the case of Down's syndrome there has been a marked increase in longevity.

Journal of intellectual disability research : JIDR, 1995 · doi:10.1111/j.1365-2788.1995.tb00549.x