Service Delivery

A longitudinal study of the quality of life of older people with intellectual disability after leaving hospital.

Dagnan et al. (1998) · Journal of intellectual disability research : JIDR 1998
★ The Verdict

Quality of life rises for three years after adults with ID leave hospital housing, then levels off.

✓ Read this if BCBAs helping older adults with ID transition out of institutional settings.
✗ Skip if Practitioners who only work with children or stable community clients.

01Research in Context

01

What this study did

Researchers followed older adults with intellectual disability after they left a hospital and moved to ordinary housing. They checked quality-of-life scores at three points: 17 months, 41 months, and 53 months after the move.

The study had no control group. It simply tracked the same people over time to see how life changed.

02

What they found

Every quality-of-life area got better during the first 41 months. After that, scores stopped rising and stayed flat.

The biggest gains happened early. By four years out, progress had plateaued.

03

How this fits with other research

English et al. (1995) saw the same upward climb. Their adults with ID also gained daily-living skills after moving to group homes, no matter if they came from an institution or the community.

Antaki et al. (2008) sound a warning. They found that older adults with ID often get parked in aged-care facilities too soon and stay too long. Together the papers show: leaving hospital helps, but later placement decisions still need watching.

McConkey et al. (2011) add context. Over eight years, most people with ID never moved at all. The ones who did usually had clear service records. Your client who finally leaves an institution is the exception, not the rule.

04

Why it matters

You can reassure families: the first three years after leaving institutional care are usually uphill. Plan intense teaching and community outings during that window. Once scores flatten, shift goals from expansion to maintenance and guard against later slips into inappropriate placements like aged-care homes.

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Front-load skill-building and community trips during the first 36 months post-move.

02At a glance

Intervention
not applicable
Design
pre post no control
Sample size
29
Population
intellectual disability
Finding
positive

03Original abstract

A study was made of the quality of life of 29 older people with intellectual disability who left hospital to live in ordinary three- or four-bedroom houses. A short version of the Questionnaire on Quality of Life was used to measure quality of life before moving and at three points in the first 53 months after changing residence. Results showed that there were improvements in quality-of-life subscales in the first 41 months with an eventual levelling out after 53 months. Social and leisure activity have been identified as particular important in the quality of life of older people. Therefore, items from the scale that measure participation in community leisure activities, contact with people without intellectual disability during these activities and engagement in leisure activities within the home were selected for detailed analysis. These data also showed increased activity and contacts in the first 41 months with a levelling out after 53 months.

Journal of intellectual disability research : JIDR, 1998 · doi:10.1046/j.1365-2788.1998.00108.x