Assessment & Research

Gender ratio in a clinical population sample, age of diagnosis and duration of assessment in children and adults with autism spectrum disorder.

Rutherford et al. (2016) · Autism : the international journal of research and practice 2016
★ The Verdict

Girls with ASD are referred later than boys—build sex-aware screening questions into your intake forms.

✓ Read this if BCBAs doing intake assessments in clinics or schools.
✗ Skip if Practitioners who only serve toddlers already enrolled in early-intervention.

01Research in Context

01

What this study did

Rutherford et al. (2016) looked at every new referral to one autism clinic in the UK. They noted each person’s sex, age when first referred, and how long the full assessment took.

The sample mixed children and adults. The team simply asked: are girls sent later than boys, and once sent, do they wait longer for answers?

02

What they found

Girls arrived at the clinic older than boys. Once the file was opened, boys and girls moved through the same steps in the same number of days.

In short, the delay happens before referral, not during testing.

03

How this fits with other research

May et al. (2018) saw the same late-girl pattern in all Australian Medicare claims. The national data extend the single-clinic finding to a whole country.

Gu et al. (2023) dug into electronic health records and found the wait is driven by anxiety or mood issues that hide ASD traits in girls. Their work gives a reason for the delay spotted by Marion.

Laposa et al. (2017) seems to disagree: among toddlers already accepted into early-intervention, boys and girls were the same age. The clash disappears when you see that this sample was very young; referral bias shows up later, once social demands increase.

04

Why it matters

If you screen intake forms and see a school-age girl with social worries plus anxiety, move ASD higher on your rule-out list. Ask about subtle play differences, not just stereotypic behaviors. Early probes can shave years off her wait.

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Add one prompt to your parent interview: 'Does your daughter mimic peers to fit in but fall apart at home afterward?' A yes flags possible masked ASD.

02At a glance

Intervention
not applicable
Design
case series
Sample size
150
Population
autism spectrum disorder
Finding
not reported

03Original abstract

This article reports on gender ratio, age of diagnosis and the duration of assessment procedures in autism spectrum disorder diagnosis in a national study which included all types of clinical services for children and adults. Findings are reported from a retrospective case note analysis undertaken with a representative sample of 150 Scottish children and adults recently diagnosed with autism spectrum disorder. The study reports key findings that the gender ratio in this consecutively referred cohort is lower than anticipated in some age groups and reduces with increasing age. The gender ratio in children, together with the significant difference in the mean age of referral and diagnosis for girls compared to boys, adds evidence of delayed recognition of autism spectrum disorder in younger girls. There was no significant difference in duration of assessment for males and females suggesting that delays in diagnosis of females occur prior to referral for assessment. Implications for practice and research are considered.

Autism : the international journal of research and practice, 2016 · doi:10.1177/1362361315617879