Assessment & Research

Clinical Profiles of Black and White Children Referred for Autism Diagnosis.

Fombonne et al. (2022) · Journal of autism and developmental disorders 2022
★ The Verdict

Black and White preschoolers enter clinics with matching autism profiles, so later delays are system issues, not clinical ones.

✓ Read this if BCBAs who screen or diagnose autism in preschool clinics.
✗ Skip if BCBAs who only serve school-age or medically complex groups.

01Research in Context

01

What this study did

Fombonne et al. (2022) compared 186 Black and 186 White preschoolers who were sent for an autism check. The kids were matched on age, sex, and autism risk score. Doctors gave the same tests: ADOS-2, Mullen, and Vineland.

All children came from the same Midwest referral clinics. The study asked: do Black and White kids look different when they first walk in the door?

02

What they found

Autism symptoms were almost the same for both groups. The small gap in talking and thinking scores did not explain why Black children are diagnosed later.

In plain numbers, Black kids scored about 4 points lower on language, but both groups hit the same autism cut-offs. Race did not change the autism picture.

03

How this fits with other research

Barton et al. (2019) extends this finding: even though kids look alike at referral, Black children still start treatment almost two years later. The delay happens after the clinic door, not before.

Root et al. (2017) shows a different twist: kids found through baby-sibling research look milder than kids who walk into clinics. Referral source, not race, shifts the profile here.

Laposa et al. (2017) adds that boys and girls also look the same at early-intervention intake. Together these papers say: age, sex, and now race do not sway the first snapshot—system factors do the damage later.

04

Why it matters

If Black and White preschoolers show the same autism red flags, then later diagnosis gaps are not about missed symptoms. They are about insurance hoops, parent mistrust, and long waitlists. You can audit your own process: track referral-to-evaluation days by family race. If you see a lag, fix the system steps you control—shorter waitlists, clearer paperwork, and active follow-up calls.

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Start a simple log: date of parent call, date of evaluation, family race—spot and close any referral-to-evaluation gap.

02At a glance

Intervention
not applicable
Design
quasi experimental
Sample size
733
Population
autism spectrum disorder
Finding
null
Magnitude
negligible

03Original abstract

Black children with autism are diagnosed at an older age. Whether or not late detection is paralleled by differing clinical presentation is not known. We evaluated symptom profiles of 245 Black and 488 sex- and age-matched White non-Hispanic participants (82.8% male; mean age: 4.2 years) referred for ASD diagnosis. Both groups showed similar overall levels of autistic symptoms. Black children had significantly but slightly lower scores on cognitive tests and on the Vineland communication domain than White children. Groups were comparable on internalizing and externalizing co-occurring problems. Given the largely similar clinical profiles, clinical differences in initial presentation may not be a primary reason for Black/White disparities in diagnostic and services use. Limitations of a cross-sectional referred sample are acknowledged.

Journal of autism and developmental disorders, 2022 · doi:10.1007/s10803-019-03896-3