Assessment & Research

Underdiagnosis and referral bias of autism in ethnic minorities.

Begeer et al. (2009) · Journal of autism and developmental disorders 2009
★ The Verdict

A simple checklist during referral can erase the ethnic bias that keeps minority kids from autism services.

✓ Read this if BCBAs who screen young children in clinics, schools, or pediatric offices.
✗ Skip if Practitioners working only with already-diagnosed adults.

01Research in Context

01

What this study did

Begeer et al. (2009) asked Dutch pediatricians to read short stories about kids with autism.

Each story was the same except for the child’s ethnic name. Doctors then chose whether to refer the child to an autism clinic.

Half the doctors also filled out a short rating scale before deciding.

02

What they found

Doctors picked more majority-group kids for referral than minority kids when they used only their gut feeling.

When doctors first completed a quick checklist, the gap almost disappeared.

Structured questions helped doctors see autism signs equally in every child.

03

How this fits with other research

Kerub et al. (2021) followed real Bedouin toddlers and found the same pattern: equal screen scores, but 43% of Bedouin families never finished diagnosis versus 16% of Jewish families.

Fombonne et al. (2022) looked at Black and White preschoolers already referred to a U.S. clinic and saw no difference in autism severity, showing the bias happens before referral, not after.

Kim et al. (2025) pooled twenty years of U.S. data and confirmed Hispanic and Native American children are still under-identified, proving the 2009 warning still matters today.

04

Why it matters

If you rely on casual observation, you may miss autism in minority clients. Add a brief rating scale like the M-CHAT or SCQ to every intake. One extra minute can cut your own referral bias and get kids into therapy sooner.

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02At a glance

Intervention
not applicable
Design
survey
Sample size
712
Population
autism spectrum disorder
Finding
negative

03Original abstract

This study examined (1) the distribution of ethnic minorities among children referred to autism institutions and (2) referral bias in pediatric assessment of autism in ethnic minorities. It showed that compared to the known community prevalence, ethnic minorities were under-represented among 712 children referred to autism institutions. In addition, pediatricians (n = 81) more often referred to autism when judging clinical vignettes of European majority cases (Dutch) than vignettes including non-European minority cases (Moroccan or Turkish). However, when asked explicitly for ratings of the probability of autism, the effect of ethnic background on autism diagnosis disappeared. We conclude that the use of structured ratings may decrease the likelihood of ethnic bias in diagnostic decisions of autism.

Journal of autism and developmental disorders, 2009 · doi:10.1007/s10803-008-0611-5