Assessment & Research

Changes in prevalence of autism spectrum disorders in 2001-2011: findings from the Stockholm youth cohort.

Idring et al. (2015) · Journal of autism and developmental disorders 2015
★ The Verdict

Stockholm’s autism count nearly quadrupled in ten years because clinicians got better at spotting kids without intellectual disability.

✓ Read this if BCBAs who explain rising caseloads to schools or parents.
✗ Skip if Clinicians looking for treatment techniques — this paper is head-counting, not therapy.

01Research in Context

01

What this study did

Idring et al. (2015) counted every child with an autism diagnosis in Stockholm from 2001 to 2011. They used medical and school records to track how many kids got the label each year.

The team split the kids into two groups: those who also had intellectual disability and those who did not.

02

What they found

Diagnosed autism nearly quadrupled, rising from about 4 in every 1,000 children to about 18 in every 1,000. Almost all of that jump came from kids without intellectual disability.

The increase was steady year after year, not a sudden spike.

03

How this fits with other research

Nygren et al. (2012) saw the same four-fold jump when they screened every 2-year-old in Gothenburg. Both Swedish studies point to better detection, not more cases.

Hewitt et al. (2016) extended the Stockholm picture by race. In Minneapolis, Somali and White children were identified at the same rate, but Somali kids with autism were more likely to also have intellectual disability.

Safer-Lichtenstein et al. (2021) showed that in the U.S., state politics and wealth drive school-identified rates. Their finding supports Stockholm’s view: where and how you look for autism changes the count more than true prevalence does.

04

Why it matters

When numbers climb this fast, families and funders worry about an epidemic. This study says the rise is mostly catching kids we used to miss, especially those without intellectual disability. For BCBAs, it means caseloads will keep growing, but the new clients may need subtler, language-rich interventions rather than intensive daily living skills. Use the Stockholm pattern to explain to parents why their child is one of many newly identified — and why early ABA still matters.

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Review your intake list: flag clients without ID and plan language-heavy, peer-interaction goals first.

02At a glance

Intervention
not applicable
Design
other
Population
autism spectrum disorder, intellectual disability
Finding
not reported

03Original abstract

In a record-linkage study in Stockholm, Sweden, the year 2011 prevalence of diagnosed autism spectrum disorders (ASD) was found to be 0.40, 1.74, 2.46, and 1.76% among 0-5, 6-12, 13-17, and 18-27 year olds, respectively. The corresponding proportion of cases with a recorded diagnosis of intellectual disability was 17.4, 22.1, 26.1 and 29.4%. Between 2001 and 2011, ASD prevalence increased almost 3.5 fold among children aged 2-17 years. The increase was mainly accounted for by an eightfold increase of ASD without intellectual disability (from 0.14 to 1.10 %), while the prevalence of ASD with intellectual disability increased only slightly (from 0.28 to 0.34%). The increase in ASD prevalence is likely contributed to by extrinsic factors such as increased awareness and diagnostics.

Journal of autism and developmental disorders, 2015 · doi:10.1007/s10803-014-2336-y