Brief Report: Prevalence of Co-occurring Epilepsy and Autism Spectrum Disorder: The U.S. National Survey of Children's Health 2011-2012.
Expect epilepsy in about 1 in 12 kids with autism—screen especially in older girls with ID and speech problems.
01Research in Context
What this study did
Thomas et al. (2017) looked at a big U.S. parent survey from 2011-2012.
They counted how many kids with autism also had epilepsy.
Parents answered yes or no to the question, "Has a doctor ever said your child has epilepsy?"
What they found
About 1 in every 12 children with autism had epilepsy.
Epilepsy showed up more in older kids, girls, and children with low income or intellectual disability.
Speech problems also went hand-in-hand with the epilepsy group.
How this fits with other research
Van Hanegem et al. (2014) used the same survey and found girls with autism have fewer total health problems, yet Shiny still flags girls for epilepsy. The two papers agree: when girls do have a medical issue, it is often speech or seizure related.
Parsons et al. (2019) moved the lens to adults 40-88 years old and saw epilepsy stay common, especially in those with ID. This extends Shiny’s child numbers into later life and tells us the risk does not fade.
Tan et al. (2019) swapped epilepsy for food allergy in the same 2011-2015 survey and found a 2.5-fold jump in autism. Together these studies show parent surveys can quickly flag several hidden medical burdens.
Why it matters
You now have a fast benchmark: expect epilepsy in roughly 8% of the autism caseload.
Add a quick epilepsy screening question for older girls, non-speaking clients, and any learner with ID.
If parents say yes, request a neurology consult before starting intensive behavioral sessions that use flashing lights or long waits—common seizure triggers.
Want CEUs on This Topic?
The ABA Clubhouse has 60+ free CEUs — live every Wednesday. Ethics, supervision & clinical topics.
Join Free →Add one line to your intake form: "Has a doctor ever said your child has epilepsy?"—flag yes answers for nurse review.
02At a glance
03Original abstract
Epilepsy is reported to co-occur in individuals with autism spectrum disorder (ASD). Previous studies across the world have found prevalence estimates ranging from 4 to 38 %. We examined parent-reported prevalence of co-occurring epilepsy and ASD in the most recent U.S. National Survey of Children's Health, 2011-2012. All analyses accounted for survey weights to account for the complex sampling design. In the overall analytic sample of 85,248 children ages 2-17, there were 1604 children with ASD (prevalence of 1.8 %) and 1083 children with epilepsy (prevalence of 1.2 %). Epilepsy was reported to co-occur in 8.6 % of ASD cases. In children with ASD, the co-occurrence of epilepsy was associated with increasing child age, female gender, intellectual disability, speech problems and lower socioeconomic status.
Journal of autism and developmental disorders, 2017 · doi:10.1007/s10803-016-2938-7