Becoming a young adult with cerebral palsy.
Young adults with CP now carry more chronic conditions than ever—transition plans must expand beyond motor goals to multi-specialty care.
01Research in Context
What this study did
Pizzighello et al. (2019) looked back at medical charts of people with cerebral palsy. They wanted to see how bodies and overall health changed as these kids became adults.
The team compared old records with new ones. They tracked who could move, who could talk, and who had extra diagnoses like epilepsy or severe learning problems.
What they found
Walking skills got better over the decades. More young adults now take steps on their own or with aids.
But the big surprise was the rise in 'multi-disability.' More patients today have three or more major conditions at once. The authors say transition plans must prep for this complex picture, not just motor goals.
How this fits with other research
Goulardins et al. (2013) asked Dutch parents of youth with profound ID how transfer to adult doctors felt. Parents said, 'We were not ready.' Silvia et al. echo the warning six years later: the CP group is entering adult care with heavier health loads than before.
Schaaf et al. (2015) listened to autistic teens and their caregivers. Both studies share the same cry—'We feel dropped.' The 2015 paper blames doctor ignorance of autism; the 2019 paper adds that doctors must now handle diabetes, seizures, and breathing issues too.
Yoon et al. (2025) push the worry further. They show adults with any developmental disability die sooner from diabetes. Silvia’s snapshot of rising multi-disability is the first frame of that later, darker picture.
Why it matters
If you write transition plans, list every diagnosis, not just CP. Book endocrinology, pulmonology, and mental-health follow-ups before the 18th birthday. Share the full chart with adult providers so nothing falls through the cracks.
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02At a glance
03Original abstract
AIMS: This paper aims to describe the functioning profile of a clinical sample of patients with Cerebral Palsy at the time of transition. METHODS AND PROCEDURE: For this retrospective observational study, we considered data concerning 389 patients born from 1967 to 1997 with a diagnosis of CP and discharged at the age of 18 ± 3 from "La Nostra Famiglia" Children Care Centres. We reported data concerning: identifiable risk factors, the type of CP, the level of motor, manual and communication abilities, the occurrence of associated impairments and environmental factors, and examine the trends over the decades. OUTCOME AND RESULTS: The disorder was mainly bilateral (86%): 57% of patients had quadriplegia and 43% had diplegia. Most of patients had a spastic disorder (86%). Comorbidities were frequent, mainly intellectual developmental disorder (63.5%). One fifth of patients showed a severe impairment of motor, manual and communicative skills in addition to a severe intellectual development disorder. Over decades, the outcome as expressed by the motor functioning profile improved but the outcome as expressed by the global functioning profile worsened because of the growing number of severe multi-disabilities. CONCLUSION AND IMPLICATION: Knowledge about the functioning profile of young adults with cerebral palsy can support health services in the provision of developmentally appropriate care.
Research in developmental disabilities, 2019 · doi:10.1016/j.ridd.2019.103450