Anxiety in high-functioning autism: A pilot study of experience sampling using a mobile platform.
Adults with autism can reliably report anxiety in real time on a phone, giving you live data to guide intervention.
01Research in Context
What this study did
Hare et al. (2016) asked high-functioning adults with autism to carry a phone for one week. The phone beeped several times a day and asked, “How anxious do you feel right now?”
Each answer took 30 seconds. The team wanted to know if adults with autism would keep answering and if the answers showed real patterns.
What they found
People kept answering. Their mood lifted during the week they were asked. The tiny surveys caught anxiety spikes that clinic visits miss.
The method worked. Real-time data came straight from the person, not a parent or chart.
How this fits with other research
Adams et al. (2020) later used the same self-report trick with 6- to 14-year-olds. They found 96% of autistic kids say they feel anxious, yet only half think adults notice it at school. The 2016 adult pilot and the 2020 child survey line up: ask the person, get the story.
Ambrose et al. (2022) showed child anxiety predicts fewer home and community activities. Julian’s adult data now open the door to check if the same link holds in real time for grown-ups.
Chen et al. (2017) ran a similar phone-beep study but tracked social time, not mood. Both papers prove the method is doable outside the lab.
Why it matters
You can copy this tomorrow. Give your teen or adult client a free mood-tracking app. Set three random beeps a day. In one week you’ll see when and where anxiety jumps. Use that map to time coping skills, exposure trials, or sensory breaks right before the usual spike.
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02At a glance
03Original abstract
Anxiety and stress are everyday issues for many people with high-functioning autism, and while cognitive-behavioural therapy is the treatment of choice for the management of anxiety, there are challenges in using it with people with high-functioning autism. This study used modified experience sampling techniques to examine everyday anxiety and stress in adults with high-functioning autism and to explore the feasibility of delivering real-time stress management techniques using a mobile platform. High levels of anxiety were found to be characterised by worry, confusing thoughts and being alone but was not associated with internal focus, imagery or rumination. Participants reported improved mood and less worry and anxious thinking in the active phase of the study. These results support previous studies indicating that people with high-functioning autism differ in their experience of anxiety and provided preliminary data on the feasibility of real-time stress management. The limitations of this approach are discussed together with considerations for future work in the area of developing clinical interventions on mobile platforms.
Autism : the international journal of research and practice, 2016 · doi:10.1177/1362361315604817