Service Delivery

Unmet dental needs and barriers to dental care among children with autism spectrum disorders.

Lai et al. (2012) · Journal of autism and developmental disorders 2012
★ The Verdict

Behavior, not autism severity, blocks dental care—but proven behavioral and sensory fixes already exist.

✓ Read this if BCBAs whose clients with autism skip or fail dental visits.
✗ Skip if Practitioners working only on medical or educational goals.

01Research in Context

01

What this study did

Lai et al. (2012) mailed surveys to families of children with autism across North Carolina. They asked one simple question: did your child see a dentist when needed? If the answer was no, parents checked why.

The team counted how many kids missed care and sorted the reasons.

02

What they found

One in every eight children with autism had untreated tooth problems. The biggest roadblock was not money or distance. It was the child’s own behavior during the visit.

Insurance and cost came next, but behavior topped the list.

03

How this fits with other research

Octavia et al. (2025) show the problem can be fixed. Their five-visit Tell-Show-Feel-Do package turned non-cooperative kids into willing patients. The 2012 barrier becomes a 2025 success story.

Boudreau et al. (2015) took a different path. They dimmed lights, played soft music, and used weighted blankets. Children stayed calmer and felt less pain. Again, the behavior barrier shrank.

Li et al. (2015) explain why some kids struggle more. Lower cognitive scores and high challenging behavior predict refusal. Screening these traits early lets you pick the right support from the start.

04

Why it matters

You now know that “uncooperative child” is code for “needs extra prep.” Use Octavia’s five-step protocol or A’s sensory room before you ever ask a dentist to open wide. Check cognitive level and behavior history first, as Y et al. suggest. These small moves turn the top barrier into a solved problem.

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→ Action — try this Monday

Call the family’s dentist and offer to run a five-minute Tell-Show-Feel-Do rehearsal in the waiting room before the real exam.

02At a glance

Intervention
not applicable
Design
survey
Sample size
555
Population
autism spectrum disorder
Finding
not reported

03Original abstract

Mail-in pilot-tested questionnaires were sent to a stratified random sample of 1,500 families from the North Carolina Autism Registry. Multivariate logistic regression analysis was used to determine the significance of unmet dental needs and other predictors. Of 568 surveys returned (Response Rate = 38%), 555 were complete and usable. Sixty-five (12%) children had unmet dental needs. Of 516 children (93%) who had been to a dentist, 11% still reported unmet needs. The main barriers were child's behavior, cost, and lack of insurance. The significant predictor variables of unmet needs were child's behavior (p = 0.01), child's dental health (p < 0.001), and caregiver's last dental visit greater than 6 months (p = 0.002). Type of ASD did not have an effect on having unmet dental needs.

Journal of autism and developmental disorders, 2012 · doi:10.1007/s10803-011-1362-2