Service Delivery

State policies and practices in behavior supports for persons with intellectual and developmental disabilities in the United States: a national survey.

Rotholz et al. (2013) · Intellectual and developmental disabilities 2013
★ The Verdict

U.S. states still write their own loose rules for who can design behavior plans—know the local patchwork before you practice.

✓ Read this if BCBAs who serve adults with IDD in more than one state or who sit on state policy committees.
✗ Skip if Clinicians who only work under one roof in a single state with fixed internal rules.

01Research in Context

01

What this study did

The team mailed a 48-item survey to the IDD director in every U.S. state and territory. They asked how each state defines behavior support, who can provide it, and how services are watched. Forty-four states answered. No clients were tested; the paper simply maps the rules.

02

What they found

States use 11 different job titles for the same work. Some require a BCBA, others accept a 20-hour certificate. Only half the states track how many people get behavior plans. In short, no national playbook exists.

03

How this fits with other research

Davison et al. (1995) first showed that adult programs rarely use functional assessment. Fahmie et al. (2013) now shows why: most states still don’t require it in their rules.

van der Miesen et al. (2024) later pulled every long-term outcome study and found most states don’t even measure quality of life. Together the three papers trace a straight line—weak policy leads to weak practice leads to unknown results.

Lulinski et al. (2021) surveyed community agencies and found many lack staff trained in behavior health. Their finding mirrors A et al.’s rule chaos: both reveal a workforce gap that policy has yet to close.

04

Why it matters

If you write behavior plans across state lines, check the local rules first. One state may accept your BCBA credential; another may demand extra paperwork. Use this map to avoid surprises and to push your state for clearer, BCBA-level standards.

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→ Action — try this Monday

Print your state’s behavior-support policy page from the survey appendix and highlight who is legally allowed to write or approve your plans.

02At a glance

Intervention
not applicable
Design
survey
Population
intellectual disability, developmental delay
Finding
not reported

03Original abstract

Providing effective behavioral supports to decrease challenging behavior and replace it with appropriate alternative skills is essential to meeting the needs of many individuals with intellectual and developmental disabilities (IDD). It is also necessary for fulfilling the requirements of Medicaid-funded individual support plans and is important for moral, ethical, and societal reasons. Unfortunately, there is no national standard for behavioral support practices or source of information on the status of behavior support policies, practices, and services for adults with IDD at either state or national levels. The collection of comprehensive data on state behavior support definitions, provider qualifications, training, and oversight requirements is a necessary starting point for the development of plans to address needed policy and practice changes. This survey is the first national assessment of state policies and practices regarding the definition and delivery of behavior support services to people with intellectual and developmental disabilities receiving publicly financed supports in the United States.

Intellectual and developmental disabilities, 2013 · doi:10.1352/1934-9556-51.6.433