Service Delivery

Respite Care, Stress, Uplifts, and Marital Quality in Parents of Children with Down Syndrome.

Norton et al. (2016) · Journal of autism and developmental disorders 2016
★ The Verdict

More respite hours cut parent stress and protect the marriage in Down-syndrome families.

✓ Read this if BCBAs who attend IFSP meetings or coach families of children with Down syndrome.
✗ Skip if Clinicians who only see clients during center hours and never touch service planning.

01Research in Context

01

What this study did

Norton et al. (2016) sent surveys to parents who have a child with Down syndrome.

They asked how many hours of respite care the family used each week.

They also asked parents to rate their stress level and their marriage happiness.

02

What they found

Parents who got more respite hours felt less stress.

Those same parents also said their marriage was stronger.

The link was clear: more respite, less stress, better marriage.

03

How this fits with other research

Harper et al. (2013) found the exact same pattern in autism families.

One extra hour of respite per week gave a big jump in marriage quality.

The two studies used the same survey tools, just different diagnoses.

Lancioni et al. (2006) showed that Down-syndrome moms start calm but stress keeps rising.

Michelle’s 2016 work shows respite can brake that climb.

04

Why it matters

If you write respite into the IFSP or help parents fight for it, you are not just giving them a break.

You are lowering their stress and shielding their marriage at the same time.

Track respite hours like you track therapy hours; both change child outcomes by keeping caregivers strong.

Free CEUs

Want CEUs on This Topic?

The ABA Clubhouse has 60+ free CEUs — live every Wednesday. Ethics, supervision & clinical topics.

Join Free →
→ Action — try this Monday

Add a line for weekly respite hours on your parent-contact sheet and bring the number to the next team meeting.

02At a glance

Intervention
not applicable
Design
survey
Sample size
112
Population
down syndrome
Finding
positive

03Original abstract

Parents of children with disabilities are at risk for high stress and low marital quality; therefore, this study surveyed couples (n = 112) of children with Down syndrome (n = 120), assessing whether respite hours, stress, and uplifts were related to marital quality. Structural equation modeling indicated that respite hours were negatively related to wife/husband stress, which was in turn negatively related to wife/husband marital quality. Also, wife uplifts were positively related to both wife and husband marital quality. Husband uplifts were positively related to husband marital quality. Therefore, it is important that respite care is provided and accessible to parents of children with Down syndrome.

Journal of autism and developmental disorders, 2016 · doi:10.1007/s10803-016-2902-6