Service Delivery

Referral trends of people with intellectual disabilities and psychiatric disorders.

Bouras et al. (2003) · Journal of intellectual disability research : JIDR 2003
★ The Verdict

London’s specialist mental-health clinic saw a steady rise in clients with mild ID, psychiatric dual diagnoses, and GP referrals over 18 years.

✓ Read this if BCBAs who serve adults with ID and mental-health comorbidities in community or clinic settings.
✗ Skip if Practitioners focused solely on severe behaviour disorders without co-occurring mental illness.

01Research in Context

01

What this study did

Constantino et al. (2003) counted every referral to one London mental-health service for people with intellectual disability. They looked at 18 years of charts to see who got sent, why, and how the pattern changed.

The team noted age, level of ID, where the referral came from, and any extra psychiatric label.

02

What they found

Referrals kept climbing. Over time, more people arrived with mild ID, not severe. More came from GPs, not hospitals. More were from non-white families. And more carried a second diagnosis like depression or psychosis.

03

How this fits with other research

Martin et al. (1997) drew the earlier map: most UK regions had almost no specialist health slots for people with ID. The rise N saw fits that blank space finally getting filled.

Lancioni et al. (2006) zoomed in on the same clinic stream and found men sent for personality disorders, women for dementia. N’s count shows the front door; E shows where people walked after they entered.

Laugeson et al. (2014) widened the lens: only 2% of big medical trials include anyone with ID. N’s climb in referrals hints that doctors are ready to help, yet drug and therapy studies still leave this group out.

04

Why it matters

If you write behaviour plans, expect more clients with mild ID and mood or psychosis labels. They may need shorter teaching sessions, visual coping tools, and close liaison with psychiatry. Track referral source: GP-sent families often know little about behaviour services, so build plain-language welcome packs and invite the GP to the first meeting.

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Add a one-page plain-language intake sheet that asks for psychiatric meds and GP contact so you can coordinate care from day one.

02At a glance

Intervention
not applicable
Design
case series
Sample size
752
Population
intellectual disability
Finding
not reported

03Original abstract

BACKGROUND: The Specialist Mental Health Service for people with an intellectual disability (ID) and psychiatric disorder (referred to throughout this paper as 'the Service') has been in operation in south-east London for the last 18 years, during which time two local, long-stay institutions have closed. AIMS: To measure the number of referrals to the Service from 1983 to 2001 and identify trends. METHODS: Data were recorded on 752 new referrals using the assessment and information rating profile. Diagnoses according to the International Classification of Diseases (10th edition) were made by two psychiatrists. Referrals for a one off consultation or assessment, or with an IQ>70 were excluded from analysis. RESULTS: Over time more non-white clients and more clients with mild ID were referred. More referrals were made in later years, and a greater proportion came from primary care. Later referrals were also more likely to have a psychiatric diagnosis than those in earlier years. CONCLUSION: Significant trends in referrals were identified, which may be explained by various external factors.

Journal of intellectual disability research : JIDR, 2003 · doi:10.1046/j.1365-2788.2003.00514.x