Referral trends in mental health services for adults with intellectual disability and autism spectrum disorders.
UK adults with ASD/ID are finally being sent to mental-health clinics for real psychiatric diagnoses instead of just sedation.
01Research in Context
What this study did
Elias and his team counted every adult with autism or intellectual disability who walked into one UK mental-health clinic between 1989 and 2005.
They wrote down why each person came, what pills they were already on, and where they lived.
What they found
Referrals more than tripled. Doctors spotted more mood, anxiety, and psychosis, not just behavior issues.
At the same time, fewer adults arrived already drugged; independent living jumped from 5 % to 30 %.
How this fits with other research
Alnahdi et al. (2026) looked at US Medicaid teens aging into adulthood. Outpatient psychiatry visits dropped while inpatient and long-term care rose. Together the two studies draw a timeline: kids get less outpatient help as they grow, yet UK adults are finally getting psychiatric attention.
Liu et al. (2017) saw ASD teens land in the ER four times more often. The rising UK referrals may be the planned mirror image—families now seek help before crisis.
Smith et al. (2010) found one in three US children with ASD already on psychotropics. Elias shows the opposite at UK adult intake—less medication, more diagnosis—hinting at earlier US prescribing or later UK recognition.
Why it matters
Your intake forms should list specific psychiatric screens, not just behavior. If clients arrive with fewer meds, plan trials of behavioral care first. Track living status—supporting independence may lower future crisis calls.
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02At a glance
03Original abstract
Researchers have paid increasing attention to mental health issues in adults with autism spectrum disorders (ASDs) over the last decades. However, little is known about how rates of clinical referrals, types of mental health diagnoses and treatment in adults with ASDs and intellectual disability have changed. We examined patterns of change in referral trends to specialist mental health services in south London from 1983 to 2000 (N = 137). The majority of the cases (58.4%) did not have a diagnosable psychiatric disorder. Schizophrenia was the most frequent psychiatric diagnosis followed by depression, adjustment reaction and anxiety. There was a significant change in the rate of referrals, an increase in the diagnosable psychiatric disorders over time and a significant reduction of medication at time of referral. There were no significant changes in the use of other therapeutic interventions. The proportion of participants living independently increased. Implications for services and future research are discussed.
Autism : the international journal of research and practice, 2007 · doi:10.1177/1362361307070987