Service Delivery

A Profile on Emergency Department Utilization in Adolescents and Young Adults with Autism Spectrum Disorders.

Liu et al. (2017) · Journal of autism and developmental disorders 2017
★ The Verdict

Autistic teens—rural, female, and older ones most of all—are flooding ERs at four times the typical rate, and the wave keeps growing.

✓ Read this if BCBAs writing transition plans for rural or high-school clients.
✗ Skip if Clinicians who only serve preschoolers in well-resourced cities.

01Research in Context

01

What this study did

Guodong’s team counted every ER trip made by U.S. teens with autism from 2005 to 2013. They used national hospital billing data and compared rates to same-age kids without autism.

They split the teens by age, sex, and rural versus city ZIP codes to see who was going up the fastest.

02

What they found

Autistic teens landed in the ER four times more often than their typical peers. The gap widened each year, with the steepest jumps in older teens, girls, and kids living in rural counties.

By 2013, an autistic young learners in a rural area was the most likely of any group to visit the emergency department.

03

How this fits with other research

Alnahdi et al. (2026) extends these numbers by showing the same teens start using more inpatient and long-term care once they turn 18, while outpatient psychiatry drops. Together the two papers trace a clear arc: heavy ER use in high school gives way to costly hospital stays in early adulthood.

Atladóttir et al. (2012) saw the same pattern earlier in Denmark. Kids with autism had more hospital contacts for almost every reason, hinting that the ER surge Guodong found is part of a broader ‘extra-contact’ effect that crosses countries.

Stephens et al. (2018) adds a why: family adversity delays diagnosis and therapy by months. When outpatient help is late, crises that end in the ER become more likely, tying the rural spike to service gaps rather than autism itself.

04

Why it matters

If you serve autistic teens, expect the ER to be part of their story—especially for older, rural, or female clients. Use this data to justify front-loading outpatient crisis plans before age 16 and to advocate for telehealth or mobile crisis teams in rural zones. A one-hour prevention call can save a six-hour ER wait.

Free CEUs

Want CEUs on This Topic?

The ABA Clubhouse has 60+ free CEUs — live every Wednesday. Ethics, supervision & clinical topics.

Join Free →
→ Action — try this Monday

Add an ER-risk flag to your crisis plan for any autistic client over 14 who lives more than 30 miles from outpatient psychiatry.

02At a glance

Intervention
not applicable
Design
other
Population
autism spectrum disorder
Finding
not reported

03Original abstract

There has been an increase in utilization of the Emergency Department (ED) in individuals with autism spectrum disorder (ASD) which may reflect a deficit of services (Green et al., Journal of the American Academy of Child and Adolescent Psychiatry 40(3):325-332, 2001; Gurney et al., Archives of Pediatric and Adolescent Medicine 160:825-830, 2006; Leichtman et al., American Journal of Orthopsyhciatry 72(2):227-235, 2001). The current study examined the rates of ED utilization between 2005 and 2013 in ASD youth 12- to 21-years-old. Adolescents with ASD accessed ED services four times as often as adolescents without ASD. Older adolescents and those living in rural areas showed a significant increase in ED visits over time. Post hoc analysis revealed increased ED utilization for females and behavioral health ED services over time. Better access to and greater understanding of services for adolescents with ASD is a critical need.

Journal of autism and developmental disorders, 2017 · doi:10.1007/s10803-016-2953-8