Service Delivery

Recruitment settings, delivery contexts, intervention techniques and outcomes of health promotion programmes for young adults with intellectual and developmental disabilities: A systematic review.

Maine et al. (2020) · Research in developmental disabilities 2020
★ The Verdict

Health-promotion programs for young adults with IDD can work in everyday settings, but most studies are small and short, so lasting change is still unproven.

✓ Read this if BCBAs planning health or fitness goals with teens or adults who have intellectual or developmental disabilities.
✗ Skip if Clinicians focused only on severe problem behavior or early-childhood verbal behavior.

01Research in Context

01

What this study did

Maine et al. (2020) pulled together every paper they could find on health-promotion programs for young adults with intellectual or developmental disabilities. They kept 16 studies that tried to change diet, exercise, or both. The team recorded where participants were recruited, where the program ran, and what the staff actually did.

Most programs signed people up through schools or day centers. Sessions usually happened in gyms, classrooms, or community halls. The review did not pool numbers; it simply mapped the field.

02

What they found

The programs could help people eat more fruit or take more steps, but the proof was thin. Many studies had few participants and no long-term follow-up. The authors warn that we cannot yet claim lasting lifestyle change.

03

How this fits with other research

This review updates Eussen et al. (2016), the first map of health programs for adults with ID. Andrew narrows the lens to young adults and adds fresh detail on recruitment and setting.

Single studies inside the review show positive snapshots. Shields et al. (2013) found twice-weekly gym sessions made young people with Down syndrome stronger and more active. Hoyle et al. (2022) saw small gains in everyday executive function after 12 weeks of community exercise. These bright spots sit beside Granieri et al. (2020), who tracked the same age group and saw health status stay flat without any program. The contradiction is only on the surface: the cross-sectional study measured natural drift, while the interventions show what can happen when extra support is added.

de Leeuw et al. (2024) recently confirmed that short, teacher-led running clubs in special-education classrooms still work. Taken together, the message is clear: brief programs can move the needle, but we need longer, better studies to know if the change sticks.

04

Why it matters

If you serve teens or adults with IDD, you now know where to look first for ready-made programs: schools, day programs, and community gyms. Pick packages that mix diet and exercise, and insist on simple, visible goals like steps or fruit servings. Track data beyond the final session; without follow-up, you will not know if the new habits survive. Use the 2013 and 2022 exercise blueprints while we wait for stronger evidence.

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Start a 30-minute, twice-weekly walking club in the day program and count steps with a simple tally sheet.

02At a glance

Intervention
not applicable
Design
systematic review
Population
intellectual disability, developmental delay
Finding
not reported

03Original abstract

BACKGROUND: People with intellectual and developmental disabilities (IDD) are at risk of developing long term health conditions, and a preventative health agenda research is emerging. However, little is known about the recruitment settings, delivery contexts, intervention techniques and outcomes of health promotion programmes for this population. Therefore, the aim of this review was to synthesize and evaluate these characteristics. METHOD: A systematic review of studies identified from multiple databases on healthy lifestyle interventions for adolescents and young people with IDD was conducted. Data were synthesized and evaluated using a logic model. Quality of rigour was also assessed. RESULTS: Sixteen geographically diverse studies were selected and evaluated. Participants were most commonly recruited from schools, with interventions typically taking place in a gym setting and involving physical activity training. CONCLUSIONS: This review indicates that physical activity and dietary interventions in people with IDD may lead to lifestyle changes, however more robust evidence is required. Educational settings are conducive, with settings beyond schools requiring further consideration.

Research in developmental disabilities, 2020 · doi:10.1016/j.ridd.2020.103592