Racial and ethnic disparities in quality of health care among children with autism and other developmental disabilities.
Black and Latino children with autism still get poorer health care and later starts—audit your caseload for equal access.
01Research in Context
What this study did
The team asked parents how good their child’s health care felt. They compared answers from Black, Latino, and White families who had kids with autism or other delays.
Parents rated things like how well doctors listened and how easy it was to get referrals. The survey was done across the United States.
What they found
Black and Latino children got lower-quality care than White children. The gap was biggest for kids with autism.
Parents of color reported more rushed visits, less information, and harder access to specialists.
How this fits with other research
Strunz et al. (2015) ran the same survey three years later and found the gaps had not closed. This direct replication shows the problem is stuck.
Barton et al. (2019) and Mendez et al. (2024) extend the finding: Black children start autism treatment later and are only half as likely to receive Part C Early Intervention.
Rosales et al. (2021) gives the parent voice behind the numbers. Latino families say language barriers and low service awareness keep them out of ABA clinics.
Why it matters
Your caseload may look diverse, but access may not be equal. Check each family’s referral path, wait time, and provider match on Monday. If a Black or Latino child has thin files or late start dates, push for earlier authorizations and bilingual materials. Equity is an active treatment target, not a side note.
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02At a glance
03Original abstract
We examined racial and ethnic disparities in quality of care for children with autism and other developmental disabilities and whether disparities varied for children with autism compared to children with other developmental disabilities. Analyzing data from the National Survey of Children with Special Health Care Needs (N = 4,414), we compared Black and Latino children to White children. We found racial and ethnic disparities on 5 of 6 quality outcomes. The interaction between race and disability status indicated that disparities in quality indicators were exacerbated among families of children with autism. These analyses suggest that children with autism, particularly those who are Latino and Black, face greater challenges in receiving high-quality health care.
Intellectual and developmental disabilities, 2012 · doi:10.1352/1934-9556-50.4.287