Service Delivery

Prevalence, Health and Resource Utilization, and Unmet Healthcare Needs of Native Hawaiian and Pacific Islander Children With Developmental Disabilities.

Payakachat et al. (2019) · American journal on intellectual and developmental disabilities 2019
★ The Verdict

NHPI children with developmental disabilities are under-counted yet over-underserved—check for hidden service gaps.

✓ Read this if BCBAs working with Native Hawaiian or Pacific Islander families in any setting.
✗ Skip if Clinicians who only serve adult clients or populations with no NHPI representation.

01Research in Context

01

What this study did

Payakachat et al. (2019) looked at Native Hawaiian and Pacific Islander kids with developmental disabilities. They used a big national survey to count how many kids need help and how many are not getting it.

The team compared NHPI children to other U.S. children with the same disabilities.

02

What they found

NHPI kids showed a lower head-count of developmental disabilities, yet they had higher unmet healthcare needs. In plain words, fewer NHPI children are on the radar, but the ones who are need services they are not receiving.

03

How this fits with other research

Farley et al. (2022) matched Irish children with intellectual disability to typical peers. They also found more unmet health needs in the disability group, backing up the NHPI picture.

Kaniamattam et al. (2021) talked to parents in South India. Parents said rehab teams ignore social goals and changing family needs, echoing the "unmet needs" theme.

Sutton et al. (2022) in Ghana and Magaña et al. (2008) in the U.S. show the same pattern: families of color face extra service barriers no matter the country.

04

Why it matters

If you serve NHPI clients, do not assume low prevalence means low need. Screen every child for gaps in therapy, dental, and medical care. Add a quick question about unmet needs to your intake and flag families who need help navigating insurance or community programs.

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Add one question to your intake: "Is there any healthcare your child needs but is not getting?" Follow up with local resource links.

02At a glance

Intervention
not applicable
Design
survey
Population
developmental delay
Finding
not reported

03Original abstract

Little is known about health limitations and service utilization among the Native Hawaiian and Pacific Islander (NHPI) children with developmental disabilities (DDs) due to limited data. Our study examined the prevalence of DDs, health limitations, services used, and the unmet needs of NHPI children aged 3 to 17 years using cross-sectional data from the 2014 NHPI National Health Interview Survey. Results showed that prevalence of DDs among NHPI children was lower than American children of other races. DDs were negatively associated with health and functioning of NHPI children. There is a need to promote understanding of DDs among NHPI families and to inform public policy makers to identify appropriate intervention services for NHPI children.

American journal on intellectual and developmental disabilities, 2019 · doi:10.1352/1944-7558-124.3.234