Prevalence, Health and Resource Utilization, and Unmet Healthcare Needs of Native Hawaiian and Pacific Islander Children With Developmental Disabilities.
NHPI children with developmental disabilities are under-counted yet over-underserved—check for hidden service gaps.
01Research in Context
What this study did
Payakachat et al. (2019) looked at Native Hawaiian and Pacific Islander kids with developmental disabilities. They used a big national survey to count how many kids need help and how many are not getting it.
The team compared NHPI children to other U.S. children with the same disabilities.
What they found
NHPI kids showed a lower head-count of developmental disabilities, yet they had higher unmet healthcare needs. In plain words, fewer NHPI children are on the radar, but the ones who are need services they are not receiving.
How this fits with other research
Farley et al. (2022) matched Irish children with intellectual disability to typical peers. They also found more unmet health needs in the disability group, backing up the NHPI picture.
Kaniamattam et al. (2021) talked to parents in South India. Parents said rehab teams ignore social goals and changing family needs, echoing the "unmet needs" theme.
Sutton et al. (2022) in Ghana and Magaña et al. (2008) in the U.S. show the same pattern: families of color face extra service barriers no matter the country.
Why it matters
If you serve NHPI clients, do not assume low prevalence means low need. Screen every child for gaps in therapy, dental, and medical care. Add a quick question about unmet needs to your intake and flag families who need help navigating insurance or community programs.
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02At a glance
03Original abstract
Little is known about health limitations and service utilization among the Native Hawaiian and Pacific Islander (NHPI) children with developmental disabilities (DDs) due to limited data. Our study examined the prevalence of DDs, health limitations, services used, and the unmet needs of NHPI children aged 3 to 17 years using cross-sectional data from the 2014 NHPI National Health Interview Survey. Results showed that prevalence of DDs among NHPI children was lower than American children of other races. DDs were negatively associated with health and functioning of NHPI children. There is a need to promote understanding of DDs among NHPI families and to inform public policy makers to identify appropriate intervention services for NHPI children.
American journal on intellectual and developmental disabilities, 2019 · doi:10.1352/1944-7558-124.3.234