Service Delivery

Patients with Autism Spectrum or Intellectual Disability in the Psychiatric Emergency Department: Findings from a 10-year Retrospective Review.

Hong et al. (2024) · Journal of autism and developmental disorders 2024
★ The Verdict

One in three ASD or ID patients who need a psychiatric bed leave the ER without one.

✓ Read this if BCBAs who help clients with crisis plans or work near emergency departments.
✗ Skip if Clinicians who only treat mild behavior issues in well-resourced areas.

01Research in Context

01

What this study did

Hong et al. (2024) looked back at ten years of psychiatric emergency visits. They found 1,461 patients who had autism or intellectual disability. The team wanted to know why these people came to the ER and what happened after.

Charts showed the main reason for the visit and where the patient went next. The study kept a simple count. No new treatment was tested.

02

What they found

Aggression was the top reason for the ER trip. About one in every three people who needed a psychiatric bed never got one. They were sent home because no hospital had space.

This means roughly 30 percent left without the care the doctor said they needed.

03

How this fits with other research

Reyes et al. (2019) already showed that people with ID have double the rate of preventable hospital stays. Victor’s team now shows the flip side: when ASD or ID patients do seek emergency help, they still can’t get a bed.

Lalli et al. (1995) found that one in five youths with ID on the inpatient unit had suicidal behavior. Victor’s work updates this picture for today’s ER and shows the risk is still high, but now the bottleneck is space, not missed signs.

Schenk et al. (2025) asked child-life staff how ready they feel for autistic kids who hit or self-harm. Most said they lack training. Together these papers form a chain: more kids need help, staff feel unprepared, and beds are missing.

04

Why it matters

If you work in a hospital, school, or home program, know that an ER visit for aggression may end in discharge simply because beds are full. Plan ahead. Write crisis plans that list more than one facility. Train your team to give ER staff quick behavior tools so a short stay is still useful. Push local systems to track and report boarding numbers—data like Victor’s can open funding for more beds or mobile crisis teams.

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Add two back-up hospitals and a brief behavior summary to every client’s crisis plan.

02At a glance

Intervention
not applicable
Design
other
Sample size
1461
Population
autism spectrum disorder, intellectual disability
Finding
not reported

03Original abstract

PURPOSE: There is a dearth of information about patients with autism spectrum disorder (ASD) or intellectual disability (ID) who seek emergency psychiatric care. Given this backdrop, this retrospective study aims to explore clinical, demographic, and disposition-related information about this patient population over a 10-year period. METHODS: This study includes individuals with ASD or ID (n = 1461) and had presented to a psychiatric emergency department between 2012 and 2021. Data were extracted using a structured chart review methodology, and included demographic, clinical and visit information. Bivariate and multivariate logistic regressions were estimated to explore associations between key variables and dispositions of interest. RESULTS: Sample was predominantly White (77.21%), adolescent (mean age ± SD = 15.5 ± 4.3) and male (72.76%). The most common reason for their presentation was aggression towards others (36.39%). 28.27% of patients were psychiatrically hospitalized but 30% of those who needed hospitalization were discharged due to lack of inpatient bed availability. CONCLUSION: This study adds to the limited literature about individuals with ASD or ID seeking emergency care. The results indicate a highly acute patient population with aggression, suicidal thoughts, and self-injurious behaviors who are frequently prescribed psychotropic medications and face barriers to accessing higher levels of care.

Journal of autism and developmental disorders, 2024 · doi:10.1093/aje/kwi122