Service Delivery

Parental experience of parent-mediated intervention for children with ASD: A systematic review and qualitative evidence synthesis.

Jurek et al. (2023) · Autism : the international journal of research and practice 2023
★ The Verdict

Parents like parent-mediated ASD interventions but will quit without personalized support and room to breathe.

✓ Read this if BCBAs running or supervising home-based parent-training cases.
✗ Skip if Clinicians who only do center-based 1:1 therapy with no parent role.

01Research in Context

01

What this study did

Jurek et al. (2023) looked at every qualitative paper that asked parents how they felt about parent-mediated ASD programs. They pulled out common themes from parents’ own words. The review covered families around the world, not just one country.

02

What they found

Parents said the same two things everywhere. First, coaching let them help their child and feel hopeful. Second, the work is hard: stress, time, and unclear instructions pile up. They begged for flexible schedules, clearer steps, and someone to call when things go wrong.

03

How this fits with other research

Lee et al. (2022) ran the numbers and found parent training lifts parent confidence only a little and does not lower caregiver stress. Lucie’s words-only review agrees: parents feel proud yet still overwhelmed.

Trembath et al. (2019) listed child and parent traits that can change outcomes. Lucie’s findings add the parent voice, showing why those traits matter in real life.

Liu et al. (2020) warned that Western manuals need cultural tweaks for Chinese families. Lucie’s global sweep shows the same call for local fit happens everywhere, not just in Asia.

04

Why it matters

When you write a parent-training plan, bake in quick-check calls, short modules, and choices of time slot. Ask what support the family needs, not just what the child needs. A flexible plan keeps parents engaged and cuts dropout.

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→ Action — try this Monday

Add a five-minute parent check-in at the start of each session: ask what felt hard last week and adjust the task list on the spot.

02At a glance

Intervention
parent training
Design
systematic review
Sample size
345
Population
autism spectrum disorder
Finding
not reported

03Original abstract

The effectiveness of parent-mediated interventions in the field of autism spectrum disorder is well documented but information on the experience of parents involved in parent-mediated interventions is limited.This study is the first synthesis of evidence concerning the experience of parents involved in parent-mediated interventions. It synthesizes the voice of 345 parents across the world into four general themes: barriers to implementation and logistical issues, feeling overwhelmed and stressed (a need for support), facilitators of implementation, and empowerment in the parent and improvement in the child.The findings of our study provide evidence that parent-mediated interventions should be adapted to the needs of each family. Specific care and support should be offered to parents in addition to parent-mediated interventions. Our study, however, highlights which outcomes are important to parents and should be considered in future studies.

Autism : the international journal of research and practice, 2023 · doi:10.1177/13623613221112204