Marital satisfaction of Chinese mothers of children with autism and intellectual disabilities in Hong Kong.
For Chinese mothers of preschoolers with ASD or ID, stigma hurts marriage mainly by piling social and emotional caregiving burden onto the couple.
01Research in Context
What this study did
Koegel et al. (2014) asked Chinese mothers of preschoolers with autism or intellectual disability to fill out surveys. The team wanted to know if feeling stigmatized hurts marital happiness, and whether caregiving burden sits in the middle of that link.
They looked at three kinds of burden: time, money, and social-emotional. All data came from mothers living in Hong Kong.
What they found
Mothers who felt more stigma also felt less happy in their marriage. The reason was the burden they carried, especially the social and emotional load of raising their child.
When burden went up, marital satisfaction went down. Stigma did its damage mainly through this burden pathway, not by itself.
How this fits with other research
Chan et al. (2021) extend the same idea. They show that more severe child autism traits raise parenting stress and coparenting fights, which then lower marital love. Both papers agree: child needs shape couple happiness through parent stress, not directly.
Yan et al. (2022) flip the lens. They find that family and friend support boosts parent involvement by lowering stress. L et al. show what drags couples down; Tingrui shows what lifts them up. The two studies fit like puzzle pieces.
Brennan et al. (2025) conceptually replicate the pathway in a Western sample. Emotional support from friends or relatives predicted relationship satisfaction, echoing the burden-satisfaction link L et al. found in Chinese mothers.
Why it matters
When you meet Hong Kong Chinese mothers, ask about felt stigma and daily burden, not just autism severity. If mom says she feels judged at the market or has no time for herself, marital strain is likely next. Offer small, concrete supports: a short respite voucher, a parent circle run by the center, or a chore chart that frees up 30 minutes for the couple. Lower the social-emotional burden first; marital warmth can rebound quickly.
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02At a glance
03Original abstract
BACKGROUND: Previous research showed an association among perceived stigma, perceived caregiving burden and marital satisfaction of mothers. However, little is known about their relationship among mothers of young children with disabilities in the Chinese context. The mediating role of perceived caregiving burden between perceived stigma and marital satisfaction was seldom explored. Hence, the present study aims to investigate the relationship between perceived stigma, perceived caregiving burden and marital satisfaction of Chinese mothers of children with intellectual disabilities or autism spectrum disorders in Hong Kong. METHODS: A cross-sectional survey using convenience sampling was conducted with mothers of pre-school children with disabilities aged from 2 to 6. A total of 160 completed questionnaires were collected from five special child care centres in Hong Kong. RESULTS: The findings in the hierarchical regression analyses showed that perceived stigma and perceived caregiving burden were significant predictors of mothers' marital satisfaction. Perceived burden, including perceived social burden, emotional burden and developmental burden but excluding time-dependence and physical burden, were found to be significant mediators between perceived stigma and marital satisfaction. CONCLUSION: To address the negative consequences brought on by stigma, measures can be taken to prevent stigmatisation and minimise the harmful effects. To alleviate mothers' perceived burden, Acceptance and Commitment Therapy, mutual support groups and psycho-educational and skills training programmes can be conducted for the mothers.
Journal of intellectual disability research : JIDR, 2014 · doi:10.1111/jir.12116