Service Delivery

Investigating the widely held belief that men and women with learning disabilities receive poor quality healthcare when admitted to hospital: a single-site study of 30-day readmission rates.

Kelly et al. (2015) · Journal of intellectual disability research : JIDR 2015
★ The Verdict

Adults with intellectual disability bounce back to hospital mostly for preventable reasons, not because they are sicker.

✓ Read this if BCBAs who consult on transition planning or caregiver training for adults with ID.
✗ Skip if Clinicians who only serve pediatric outpatient cases.

01Research in Context

01

What this study did

A UK hospital tracked 30-day readmissions for adults with intellectual disability.

Staff compared each readmission to see if it could have been prevented.

They wanted to test the belief that this group gets poor inpatient care.

02

What they found

Readmission rates looked the same as the general public.

Yet seven in ten of those returns were avoidable.

The care quality gap hides inside preventable returns, not raw numbers.

03

How this fits with other research

Durbin et al. (2019) saw the same 30-day bounce-back pattern in emergency departments.

Their lens was wider and included psychiatric labels, but the message matches: adults with ID return too soon.

Wu et al. (2013) found psychiatric inpatients with ID stay 30-40 % longer and fail discharge more often.

Longer stays and later readmissions are two faces of the same quality problem.

Stofleth et al. (2022) pooled 16 studies and showed autistic adults also over-use hospitals.

Together these papers map a system-wide leak: outpatient care is not ready for neurodivergent adults.

04

Why it matters

You can’t trust raw readmission counts alone. Ask the discharge team to flag each return as avoidable or not. Build a short checklist for primary care follow-up within one week. These two steps turn hidden poor care into visible data you can fix.

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Add a seven-day post-discharge phone call script to your care plan and track if it cuts returns.

02At a glance

Intervention
not applicable
Design
pre post no control
Sample size
66870
Population
intellectual disability
Finding
negative

03Original abstract

BACKGROUND: This study aims to use 30-day readmission rates to investigate the presumption that men and women with learning disabilities (LDs, known internationally as intellectual disabilities) receive poorer quality hospital care than their non-disabled peers. METHOD: A 12-month retrospective audit was conducted using Hospital Episode Statistics (HES) at a single acute hospital in the East of England. This identified all in-patient admissions; admissions where the person concerned was recognised as having a LD; and all emergency readmissions within 30 days of discharge. Additionally, the healthcare records of all patients identified as having a LD and readmitted within 30 days as a medical emergency were examined in order to determine whether or not these readmissions were potentially preventable. RESULTS: Over the study period, a total of 66 870 adults were admitted as in-patients, among whom 7408 were readmitted as medical emergencies within 30 days of discharge: a readmission rate of 11%. Of these 66 870 patients, 256 were identified as having a LD, with 32 of them experiencing at least one emergency readmission within 30 days: a readmission rate of 13%. When examined, the healthcare records pertaining to these 32 patients who had a total of 39 unique 30-day readmissions revealed that 69% (n = 26) of these readmissions were potentially preventable. CONCLUSION: Although overall readmission rates were similar for patients with LDs and those from the general population, patients with LDs had a much higher rate of potentially preventable readmissions when compared to a general population estimate from van Walraven et al. This suggests that there is still work to be done to ensure that this patient population receives hospital care that is both safe and of high quality.

Journal of intellectual disability research : JIDR, 2015 · doi:10.1111/jir.12193