Service Delivery

Health issues for adults with developmental disability.

Sutherland et al. (2002) · Research in developmental disabilities 2002
★ The Verdict

Adults with developmental disability often suffer from fixable health problems that behavior analysts can help spot and prevent.

✓ Read this if BCBAs in residential, day-program, or clinic settings serving adults with developmental disability.
✗ Skip if Practitioners who work only with typically developing clients or young children.

01Research in Context

01

What this study did

Georgina and her team read every paper they could find on health care for adults with developmental disability.

They did not run a new experiment. They simply pulled together what was already known in 2002.

The review looked at how often common illnesses like epilepsy, tooth pain, or heart disease are missed.

02

What they found

Many adults with DD have treatable health problems that no one notices.

Doctors and support staff often blame new behaviors on the disability itself instead of looking for a medical cause.

The authors say we need behavior-smart health services that teach both staff and clients what to watch for.

03

How this fits with other research

van der Geest et al. (2002) published the same year and showed one fix: mentor teams so behavior plans and medicine plans talk to each other. Their data prove the teamwork Georgina asked for can be trained and can last.

Falcomata et al. (2012) later echoed the same worry but shifted the spotlight onto mental-health staff who still feel lost when DD and psychiatric labels overlap.

Peng et al. (2026) move the idea downstream to kids: big meta-analysis shows exercise programs erase motor-coordination gaps in children with DD. Together the papers form a timeline: spot the illness, train the team, add proven health habits.

04

Why it matters

If you serve adults with DD, treat every new behavior as a possible health alarm. Run a quick medical screen first. Then loop in the doctor, the behavior analyst, and the direct-support team the way N et al. showed. Small checklists and shared data sheets can stop small problems from becoming crises.

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Add a two-minute health check to your session start: look for red gums, grimacing, or sudden posture changes and flag for nurse follow-up.

02At a glance

Intervention
not applicable
Design
narrative review
Population
developmental delay
Finding
not reported

03Original abstract

The aim of this paper is to review recent literature on health issues for adults with developmental disability and reflect on how this research informs service provision, future research work, and social and health policy. Studies based on mortality data are most likely to aim at identifying individuals most at risk of premature death, and some researchers argue that health-oriented service systems appear ill-equipped to address the needs of the at risk groups. Morbidity studies highlight specific health concerns found in this population and commonly report high rates of untreated, yet treatable, conditions. The emerging literature on the behavioral determinants of health suggests risk of preventable morbidity and mortality because of the lack of health-promoting behaviors, particularly in relation to diet and physical activity. Of particular interest in this literature is the affect of living arrangements on health promoting activities. This paper concludes that future directions in health research for adults with developmental disability will be concerned with the complexity of the interactions between biology, pathology, and behavioral and environmental determinants. More use of self-reported health studies is suggested, as well as further exploration of effective strategies of health promotion and health promoting decision-making and self-determination among this population.

Research in developmental disabilities, 2002 · doi:10.1016/s0891-4222(02)00143-9